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She is Bravery and Strength - by Lindsey Comstock
My daughter Emerson was born on November 8th, 2021. When I was pregnant with her there were some issues that had us seen by a specialist...
I'm My Daughter's Biggest Advocate - by Melody Espitia
Let me tell you about my 1 in 2,000! My butterfly was diagnosed 20 years ago at the age of 6. We were blessed with an awesome...
My Life Changed After My Diagnosis - by Lourdes Bustos
My name is Lourdes, and I am a 32-year-old Mexican American. I was diagnosed with Turner syndrome (TS) when I was 11 years old. Since I...
I Support Access to Care - by Bethany Weddle
I don't usually get to much into the debates that I sometimes see in the TS community that center on what counts as TS, if we are truly...
Fighting to Get the Health Care I Need and Deserve - by Crystal Messer
My name is Crystal Messer, and here is my story. I'm a 41-year-old female with Turner syndrome (TS). I was diagnosed when I was 9 years...
Turner Syndrome Awareness Month Is Important - by Janine Reyes, TSSUS Board Member
Turner Syndrome Awareness Month is important to us and we want to share it with you. I'm Janine Reyes, and my daughter, Josslyn, is 17...
Just Keep Swimming - by Andrea Pflughoeft
February holds a special meaning in my heart-not only because my birthday is Groundhog Day (Feb. 2nd), but because I get to celebrate...
Turner Syndrome Can't Stop You - by Carissa Caulum
Hi, my name is Carissa Caulum. I am 28 years old and was born with Turner Syndrome (TS). In those 28 years I have had open heart surgery...
She Has Defied All Odds - by Shelby Collins
My name is Shelby Collins, and my daughter Juliauna, has Turner syndrome (TS). We live in Corinth, Kentucky. She was diagnosed with TS...
Don't Sweat the Small Stuff - by Kaitlin Cohen
Hello, my name is Kaitlin Cohen and I was born in Philadelphia, Pennsylvania. I currently live in Willow Grove, Pa with my two cats...
Be Strong and Brave - by Mariya Ahmad
I am Mariya Ahmad, and I am a student in the 9th Grade. I was about 12 years old when I found about my Turner syndrome (TS). I was sort...
I'm Healthy, Happy, Married and Strong! - by Jennifer Laubach
Hi, my name is Jennifer Laubach. I didn't get diagnosed until I was 23 years old. I have mosaic Turner syndrome (TS), and it can be hard...
Hoping to Meet New Friends at the Conference - by Emily Limbach
My name is Emily Limbach and I have Turner's syndrome (TS). My TS was diagnosed before I was born. I was adopted by a single mom who is a...
I Found Happiness with My TS, and So Can You! - by Randi Rodgers
Hi I’m Randi! Here is my story. I was born in 1986 when my mother was 34. My father was a Vietnam veteran, and he was 36. Mom already had...
I'm a Happy Wife, Mother, and Educator - by Suzanne Ditacconi
This is me! I was diagnosed at birth in 1980. For the first twelve years of my life, I faced many medical challenges; cleft palate, bi...
Called to Religious Life after Medical School - by Lynn Mousel
I am 52 years old and was diagnosed with Turner syndrome (TS) at birth. When I was born, I had lymphedema and a dislocated hip. I always...
