TSSUS advances research in areas the TS community identifies as important. We maintain a scientific advisory board, facilitate study recruitment, maintain a national registry of individual’s health and contact information, produce research articles and assists researchers with various needs. Please support TS research.

TSSUS Annual Educational TS Conference The National Turner Syndrome Conference offers patients and families a unique opportunity to connect with others in the TS community, attend educational sessions, join youth groups, get health screenings and much more.

We offer 4 types of Scholarships: Membership, Life Enrichment, College, and Conference Registration. Find out about who is eligible and details about what each scholarship covers.

Online and in-person meetings that connect you with others so you may support one another. Some groups meet according to age and some by location, they all are informal and respectful. Find support groups in your area here (Support Groups), or here (Event Calendar).

Memorials. Butterfly Wings to Angel Wings. The world changes from year-to-year and our lives from day-to-day, but the love and memory of you shall never pass away.

Facebook Private Groups: Need advice or encouragement or want to share good news with others that can relate? TSSUS Private FB groups are the answer.

New to TS? Stumped on what to do? Interested in talking to someone that may know how you feel? Contact us and we will connect you with an expert peer volunteer.

We offer monthly and quarterly Zoom Generational calls, host social and educational events in person across the nation, and host online educational webinars.