About the Turner Syndrome Society of the US
The TSSUS is recognized as national non-profit 501 (c) (3) EIN# 41-1596910 organization providing health-related resources to patients, families, and physicians for the diagnosis and treatment of Turner syndrome. There are chapters and resource groups located throughout the country. The TSSUS is operated by 4 staff members at our National Office in Houston, TX, and is overseen by 11 nationwide board members.
The Turner Syndrome Society advances knowledge, facilitates research and provides support for all persons touched by Turner syndrome. Staff members answer questions via phone and e-mail, work with local groups, create resources, plan events, and keep our website up to date and relevant to the needs of our unique community.