TSSUS
Support Groups


TSSUS support groups could be easily called Friend Groups because it’s important to connect with people that really “get you”. Who else knows how you feel when you must take vacation time for doctors’ appointments, or how proud you are of yourself for not getting lost on vacation? Who can help you overcome your fears about giving a growth hormone injection? Your friends at TSSUS ... that’s who can help you, encourage you, and listen to you!

Group leaders organize events for socializing and sharing experiences. Anyone with a TS affiliation can attend but some events may be organized for only certain groups, such as women with TS. Groups may meet in-person or online-only.You’ll find them l listed as "online" instead of a state.
All TSSUS events are listed on the online Calendar of Events.
Interested in connecting with a group leader, starting a group, hosting a TSSUS one-time event, or have questions about events? Call 800-365-9944 or email us.
Alabama
Elizabeth Fontenot
We are the Alabama Support Group for the Turner Syndrome Society. Our focus is to provide basic support and resources to all those affected by Turner Syndrome. As a group, we want to raise awareness of Turner syndrome and fundraise for the Turner Syndrome Society. All are welcome! We meet twice a year at various locations throughout the state (event locations vary based on the type of event). We would love for you to join us. Please let us know how we can serve you!
Arizona
Lisa & Kelly Jasper
We are the Arizona Support Group for the Turner Syndrome Society. Our focus is to provide basic support and resources to all those affected by Turner Syndrome. As a group, we want to raise awareness of Turner syndrome and fundraise for the Turner Syndrome Society. All are welcome! We meet several times throughout the year at various locations throughout the state (event locations vary based on the type of event). We would love for you to join us. Please let us know how we can serve you!
California
Rosemary Morris
We are the Central and Northern California Turner Syndrome Support Group, and are an affiliated resource group of the Turner Syndrome Society of the United States. Our focus is to provide basic support to all of the girls, women, and their families who have been touched by Turner Syndrome. We are widely known for our TS Patient Family Education Days, which are held at various major children’s hospitals through Central and Northern California. We usually have approximately 60 to 70 girls, women, and their families in attendance. We also meet at various restaurants throughout the SF Bay Area and Sacramento. We have also held annual TS Awareness Walks for the past three years at our State Capitol Building in Sacramento. Please contact our group leader to let us know how we can serve you.
Delaware
Lynda Taylor
Welcome to the Delaware Valley Turner Syndrome Support Group. Our desire is to provide support and resources to families and friends in the Delaware, Pennsylvania, Maryland area who are touched by TS. We enjoy getting together for activities or sharing a meal about 4 times a year. We plan a fundraiser every year or so to raise awareness in the area as well as funds for further research. Please feel free to come be a part of us as well as invite others to join us.
Kentucky
Lisal Folsom and Madison Shannon
The Kentucky Turner Syndrome Support Group is an affiliated resource group of the Turner Syndrome Society of the United States. Our goal is to provide support, education, and resources to girls, women, their families, and other individuals affected by Turner Syndrome. We meet every 3-4 months to discuss issues related to Turner syndrome, catch up, and enjoy delicious snacks. We’d love to have you join us!












