The TSSUS Blog shares personal stories about TS

This Is Our Daughter's Story - by Leslie Leber

Hello TS Community! We have been members of TSSUS for over ten years and by sharing our daughter’s story, want to pass on the support and...

I'm Confidently Facing My Future Now - by Naveh Riles

Hi, my name is Naveh. I am 28 years old. I was diagnosed with TS when I was born. From the beginning, I dealt with some health issues. I...

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

When Kim was born in 1964, we were told she wouldn't live beyond her first year. At that time the medical field knew practically nothing...

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

I’m sharing my story to give hope to those trying to expand their families or who are pregnant and need reassurance. My name is Holly and...

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

My Turner syndrome (TS) story started when I was diagnosed at birth, and a lot of my youth was spent at the Children's Hospital in...

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

Hello TSSUS community! My name is Kristen McKenney and I have the privilege of serving on the board for the Turner Syndrome Society of...

I Choose to Always Stay in Gratitude - by Debra McMichael

Hi, my name is Debra and I just recently turned 45 years old. I live in Wisconsin. I was born here but have done my fair share of...

I Found an Outlet in Theater and Choir - by Emily Rose

Hi my Name is Emily Rose and I'm 19 years old. I was diagnosed with mosaic Turner syndrome (TS) at six weeks old. Growing up, this caused...

Teaching Special Education is the Path for Me - by Emily Jackson

Like so many, I was diagnosed with Turner syndrome (TS) before I was born. At the time, my parents were given what felt like horror...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

This Is Our Daughter's Story - by Leslie Leber

I'm Confidently Facing My Future Now - by Naveh Riles

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

Recent Posts

This Is Our Daughter's Story - by Leslie Leber

I'm Confidently Facing My Future Now - by Naveh Riles

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

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