The TSSUS Blog shares personal stories about TS

My TS Story - Conference Edition, by Brittany Hinsey

Hi, my name is Brittany Hinsey and I just wanted to give my insights on my experience with the Turner Syndrome Society’s conference....

Back-to-School Tips for Children with Turner Syndrome - by Becky Brown

Back-to-school season can be exciting but also challenging—especially for children with Turner syndrome (TS). While every child is...

My TS Story - Conference Edition, by Erica Melman

Hello. My name is Erica Melman and this is My TS Story – Conference Edition. My experience started at the kickoff event. When the Amanda...

This Is Our Daughter's Story - by Leslie Leber

Hello TS Community! We have been members of TSSUS for over ten years and by sharing our daughter’s story, want to pass on the support and...

I'm Confidently Facing My Future Now - by Naveh Riles

Hi, my name is Naveh. I am 28 years old. I was diagnosed with TS when I was born. From the beginning, I dealt with some health issues. I...

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

When Kim was born in 1964, we were told she wouldn't live beyond her first year. At that time the medical field knew practically nothing...

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

I’m sharing my story to give hope to those trying to expand their families or who are pregnant and need reassurance. My name is Holly and...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

My TS Story - Conference Edition, by Brittany Hinsey

Back-to-School Tips for Children with Turner Syndrome - by Becky Brown

My TS Story - Conference Edition, by Erica Melman

This Is Our Daughter's Story - by Leslie Leber

I'm Confidently Facing My Future Now - by Naveh Riles

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

Recent Posts

My TS Story - Conference Edition, by Brittany Hinsey

Back-to-School Tips for Children with Turner Syndrome - by Becky Brown

My TS Story - Conference Edition, by Erica Melman

This Is Our Daughter's Story - by Leslie Leber

I'm Confidently Facing My Future Now - by Naveh Riles

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

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