TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

Hi! My name is Jennifer. I was born with Turner syndrome in 1972, but that did not stop me! I did not have any obvious signs of TS at birth. I was much smaller than kids my age. Eye hand coordination and spatial awareness was a challenge for me. I did well in school and enjoyed reading and writing. I was diagnosed at 16, when I did not physically mature as expected. I felt different at first. It is difficult to receive a diagnosis at any age but being diagnosed as a teenager

Childhood: Early Awareness and Planning.   From the moment I was born, my parents knew my Turner syndrome(TS) diagnosis would mean lifelong monitoring -  that my needs would evolve as I grew. They were right. What no one fully explained was how much those needs would change, or how deeply each stage of life would reshape my understanding of myself. As a child, care revolved around growth and heart health. My parents coordinated appointments, tracked milestones, and balanced a

Turner syndrome (TS) is a genetic condition that affects females, caused by a partial or complete absence of one of the X chromosomes. It...

Hi, my name is Emily! My story starts right at the beginning, with my birth in 1975. As my mother tells the story, a very observant...

Vocational Rehabilitation (VR) Services can be valuable support for people with Turner syndrome (TS) who may face challenges related to...

Nonverbal Learning Disorder (NVLD) is often described as an “invisible disability.” While people with NVLD may excel in verbal...

Hi, my name is Brittany Hinsey and I just wanted to give my insights on my experience with the Turner Syndrome Society’s conference....

Back-to-school season can be exciting but also challenging—especially for children with Turner syndrome (TS). While every child is...

Hello. My name is Erica Melman and this is My TS Story – Conference Edition. My experience started at the kickoff event. When the Amanda...

Hello TS Community! We have been members of TSSUS for over ten years and by sharing our daughter’s story, want to pass on the support and...

Hi, my name is Naveh. I am 28 years old. I was diagnosed with TS when I was born. From the beginning, I dealt with some health issues. I...

When Kim was born in 1964, we were told she wouldn't live beyond her first year. At that time the medical field knew practically nothing...