TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

I was extremely sick when I was little. I was born in 1992, and no one could explain why I was so sick and I was diagnosed with failure to thrive. Fortunately, I recovered but no one was sure why. Growing up, I was always much shorter than my two sisters and looked very young. I also had trouble in school as I was diagnosed with dyslexia, but I was able to graduate college and law school, pass two bar exams, and go on to become a practicing attorney. Fast forward to 2024 and

Hi, I’m Morgan Crumrine, and I joined the Turner Syndrome Society of the United States (TSSUS) in September as the conference coordinator. I am excited to be part of this incredible organization and to help bring together the people, planning, and purpose behind the national conference. I’ve always loved being a part of something larger than myself by providing work that turns ideas into meaningful experiences. I graduated from Texas A&M University with a degree in Agricultur

Hi! My name is Jennifer. I was born with Turner syndrome in 1972, but that did not stop me! I did not have any obvious signs of TS at birth. I was much smaller than kids my age. Eye hand coordination and spatial awareness was a challenge for me. I did well in school and enjoyed reading and writing. I was diagnosed at 16, when I did not physically mature as expected. I felt different at first. It is difficult to receive a diagnosis at any age but being diagnosed as a teenager

Childhood: Early Awareness and Planning.   From the moment I was born, my parents knew my Turner syndrome(TS) diagnosis would mean lifelong monitoring -  that my needs would evolve as I grew. They were right. What no one fully explained was how much those needs would change, or how deeply each stage of life would reshape my understanding of myself. As a child, care revolved around growth and heart health. My parents coordinated appointments, tracked milestones, and balanced a

Turner syndrome (TS) is a genetic condition that affects females, caused by a partial or complete absence of one of the X chromosomes. It...

Hi, my name is Emily! My story starts right at the beginning, with my birth in 1975. As my mother tells the story, a very observant...

Vocational Rehabilitation (VR) Services can be valuable support for people with Turner syndrome (TS) who may face challenges related to...

Nonverbal Learning Disorder (NVLD) is often described as an “invisible disability.” While people with NVLD may excel in verbal...

Hi, my name is Brittany Hinsey and I just wanted to give my insights on my experience with the Turner Syndrome Society’s conference....

Back-to-school season can be exciting but also challenging—especially for children with Turner syndrome (TS). While every child is...

Hello. My name is Erica Melman and this is My TS Story – Conference Edition. My experience started at the kickoff event. When the Amanda...

Hello TS Community! We have been members of TSSUS for over ten years and by sharing our daughter’s story, want to pass on the support and...