The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.
TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.
Volunteer
Our success depends on volunteers!
TSSUS thrives because of the time, talent, and enthusiasm that members like you invest in our programs. Connecting women and parents with TS to the resources they need is a crucial part of our mission.
Immediate Volunteer Needs
TSSUS Board Member
Between now and July 31, 2025, we are taking applications from members who would like to join the Board of Directors.
If you are interested, Apply Now.
Short-Term Volunteer Opportunities
Host a TSSUS Social Event
Plan a day at the zoo, the bowling alley, lunch, pool party, or another get-together in your area.
We invite the people and provide funding depending on the type of event and the number of people expected. Contact Us.
Help at the TSSUS National Conference
Volunteer for a few hours at the “Butterfly store”, decorate, assist with youth group activities (Mad Science, outings, paint fingernails, etc.), and other needs. Registered attendees will receive an email about volunteer opportunities.
Host a Chasing Butterflies Walk Fundraiser
The TSSUS national fundraiser raises valuable funds for TSSUS and connects people in the TS community. Hosts should aim to raise at least $2,000 through the event and $500 through their walk team. Limited funding and liability insurance are available. Learn more at the Chasing Butterflies Walk page.
Long-Term Volunteer Opportunities
TSSUS Board Member
The board of directors governs TSSUS by providing foresight, oversight, and insight.
Reference: Board Roles and Responsibilities | National Council of Nonprofits and TSSUS board member expectations (document in the works).
TSSUS Private Facebook Group
Share your TS experiences, encourage others, connect people to TSSUS resources, and inform the staff about special needs. Join the TSSUS Private Facebook Group.
Support Group Leader
Support groups can be led by anyone within the TS community, including a professional, a person with TS, or a family member. Additional information is available at the bottom of the Support Group page.
Subscribe to eNewsletters for continual volunteer opportunities. We understand most people have limited time, so we offer many opportunities with varying commitments. Thank you for considering joining our team!
For more information about volunteering, call 800-365-9944 or email us.