2026 National Turner Syndrome Conference
Presentations & Handouts Now Available

Thank you to everyone who joined us in Raleigh, NC for the 2026 National Turner Syndrome Conference! We know not everyone was able to attend every session — or attend at all — so we're pleased to share presentation slides and handouts from many of our conference speakers here on our website.

Reproduction and Fertility
A review of the TS clinical guideline recommendations for planning a pregnancy and reproductive assistive technologies for those with TS. Presented by Tara Streich-Tilles, MD; Kelly Acharya, MD; Jerome Federspiel, MD, PhD.

Advances in TS Research Part 1
TS researchers will share emerging findings, key questions they’re exploring, and what’s ahead. Ask questions and learn how your participation in TS Research Registries drives future breakthroughs. Presented by Dr Shanlee Davis, MD

Life Lessons with Barbara Flink
A guided reflection as we identify key words related to life lessons that have helped us grow, and might help others sora.

Liver & Stomach Heath in Turner Syndrome
This session will help attendees understand the role of the liver, common liver-related findings in Turner syndrome such as elevated liver enzymes and what you should know to support liver health. Presented by Dr Matthew Kappus, MD

Advances in TS Research Part 2
TS researchers will share emerging findings, key questions they’re exploring, and what’s ahead. Ask questions and learn how your participation in TS Research Registries drives future breakthroughs. Presented by Dr Siddharth Prakash, MD, PhD.

Dating & Intimacy with TS FAQ
Everything you wanted to know about dating and Intimacy but were afraid to ask.

"A space where you can just let loose
and relate to everyone and not be judged."

Brittany Hinsey

"Missing my TS sisters soooo much!!!!
This was one of the best trips EVER!!!!! I may be exhausted by my heart is full!!!!!"

Molly Van Gilder

"What an amazing experience as always, THANK YOU to everyone for all your hard work planning, organizing, and making it happen! Miss my butterfly sisters already!!"

Laura Anderson

"It’s impossible to not make new friends at the conference."

Stephanie Wieberg Thompson

"The amount of joy I feel looking through the photos of all the new friendships the young girls are making and the celebrating of those that were built years ago from their first trip to a conference. I can never say thank you enough to TSSUS for all they have provided to me, my butterfly and my mother."

Trisha Howard

What to expect at TSSUS conferences.

Information about the latest advances in research, treatments, and care.

An inspiring and supportive community to share experiences, stories, and strategies for managing TS-related needs confidently.

Opportunities to learn to love our authentic selves and overcome challenges related to TS.

The Healthy Heart Project (odd years, 2027, 2029, etc.) where attendees with TS can receive a free echocardiogram while supporting TS research

Interactive Q&A sessions with medical professionals where you can get your specific questions answered.

Breakout groups for adults and specialized programs for children ages 4-12 and teens 13-18.

Entertainment events that bring everyone closer together.

For Butterfly Society members, an invitation to a V.I.P. Butterfly Society and Major Donor Reception.

Welcome to the world’s largest Turner syndrome community!

2026 National Turner Syndrome Conference Presentations & Handouts Now Available

Reproduction and Fertility A review of the TS clinical guideline recommendations for planning a pregnancy and reproductive assistive technologies for those with TS. Presented by Tara Streich-Tilles, MD; Kelly Acharya, MD; Jerome Federspiel, MD, PhD.

Advances in TS Research Part 1 TS researchers will share emerging findings, key questions they’re exploring, and what’s ahead. Ask questions and learn how your participation in TS Research Registries drives future breakthroughs. Presented by Dr Shanlee Davis, MD

Life Lessons with Barbara Flink A guided reflection as we identify key words related to life lessons that have helped us grow, and might help others sora.

Liver & Stomach Heath in Turner Syndrome This session will help attendees understand the role of the liver, common liver-related findings in Turner syndrome such as elevated liver enzymes and what you should know to support liver health. Presented by Dr Matthew Kappus, MD​

Advances in TS Research Part 2 TS researchers will share emerging findings, key questions they’re exploring, and what’s ahead. Ask questions and learn how your participation in TS Research Registries drives future breakthroughs. Presented by Dr Siddharth Prakash, MD, PhD.

Dating & Intimacy with TS FAQ Everything you wanted to know about dating and Intimacy but were afraid to ask.