Registration for the 2026 TSSUS National Turner Syndrome Conference opens Mon, Feb 2, 2026.
We can't wait to see you all in Cary (Raleigh),
North Carolina, July 24-25, 2026!
Turner Syndrome Conferences
Learning • Connecting • Supporting
1988 - 2025
"A space where you can just let loose
and relate to everyone and not be judged."
Brittany Hinsey
"Missing my TS sisters soooo much!!!!
This was one of the best trips EVER!!!!! I may be exhausted by my heart is full!!!!!"
Molly Van Gilder
"What an amazing experience as always, THANK YOU to everyone for all your hard work planning, organizing, and making it happen! Miss my butterfly sisters already!!"
Laura Anderson
"It’s impossible to not make new friends at the conference."
"The amount of joy I feel looking through the photos of all the new friendships the young girls are making and the celebrating of those that were built years ago from their first trip to a conference. I can never say thank you enough to TSSUS for all they have provided to me, my butterfly and my mother."
Trisha Howard
2026 TSSUS National Conference Registration starts February 1st!
We are excited to announce that the 2026 TSSUS National Conference will be held July 24th – 25th in Cary/Raleigh, North Carolina. Located in the heart of the state’s renowned Research Triangle region, this vibrant area offers easy travel access, a welcoming community, and close proximity to major medical and research institutions.The Research Triangle is named for its connection to three leading research universities— North Carolina State University, Duke University, and the University of North Carolina at
Chapel Hill—which together form a hub of academic research, clinical expertise, and interdisciplinary collaboration.
The 2026 conference speaker lineup includes professionals affiliated with these universities and the surrounding healthcare systems, bringing perspectives informed by academic medicine, clinical practice, and ongoing research. This environment of inquiry and collaboration provides a meaningful setting for Discovery and Discussion as our community comes together to connect, learn, and look ahead.
Additional venue details will be shared soon.
Here's what you missed at last year's conference in Portland.
What to expect at TSSUS conferences.
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Information about the latest advances in research, treatments, and care.
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An inspiring and supportive community to share experiences, stories, and strategies for managing TS-related needs confidently.
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Opportunities to learn to love our authentic selves and overcome challenges related to TS.
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The Healthy Heart Project (odd years, 2027, 2029, etc.) where attendees with TS can receive a free echocardiogram while supporting TS research
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Interactive Q&A sessions with medical professionals where you can get your specific questions answered.
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Breakout groups for adults and specialized programs for children ages 4-12 and teens 13-18.
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Entertainment events that bring everyone closer together.
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For Butterfly Society members, an invitation to a V.I.P. Butterfly Society and Major Donor Reception.