The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.
TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.
Turner Syndrome Conferences
Learning • Connecting • Supporting
1988 - 2025
"A space where you can just let loose
and relate to everyone and not be judged."
Brittany Hinsey
"Missing my TS sisters soooo much!!!!
This was one of the best trips EVER!!!!! I may be exhausted by my heart is full!!!!!"
Molly Van Gilder
"What an amazing experience as always, THANK YOU to everyone for all your hard work planning, organizing, and making it happen! Miss my butterfly sisters already!!"
Laura Anderson
"It’s impossible to not make new friends at the conference."
"The amount of joy I feel looking through the photos of all the new friendships the young girls are making and the celebrating of those that were built years ago from their first trip to a conference. I can never say thank you enough to TSSUS for all they have provided to me, my butterfly and my mother."
Trisha Howard
We’re already working on our 2026 Conference.
There is a lot of planning and negotiating needed to select a Conference city. We can’t actually take a vote, but we would love to hear what you think!
Got ideas? Location, Workshops, Activities? Let us know.
Here's what you missed at this year's conference in Portland.
What to expect at TSSUS conferences.
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A wonderful community of friends, experts and families meeting the challenges of Turner Syndrome.
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Information about the latest advances in research, treatments, and care.
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An inspiring and supportive community to share experiences, stories, and strategies for managing TS-related needs confidently.
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Opportunities to learn to love our authentic selves and overcome challenges related to TS.
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The Healthy Heart Project (odd years, 2027, 2029, etc.) where attendees with TS can receive a free echocardiogram while supporting TS research
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Interactive Q&A sessions with medical professionals where you can get your specific questions answered.
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Breakout groups for adults and specialized programs for children ages 4-12 and teens 13-18.
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Entertainment events that bring everyone closer together.
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For Butterfly Society members, an invitation to a V.I.P. Butterfly Society and Major Donor Reception.