Community Calendar

Upcoming Events

"Given the current nationwide and ongoing stay home orders, social distancing, and regulations about gatherings due to COVID-19, the Turner Syndrome Society of the United States is postponing and/or cancelling all in-person TSSUS local events,  meetings and, get-togethers. We are reevaluating directives from local and national authorities as they develop, and are looking forward to getting back to business-as-usual as soon as it is deemed safe to do so. In the meantime, please reach out to us with any questions or concerns you may have. As always, we appreciate you being a part of the TSSUS community and your support."

Sep 25, 2020

Friday night bingo with Brooke

When: Friday, September 25th from 7:00 pm - 8:00 pm

 

Join Brooke for this fun virtual bingo night. This is a free opportunity and will be a great time to just have fun while playing the ":all time favorite" game of bingo right in the comfort of your home!

Sep 26, 2020

15.00

Liver Involvement in Turner syndrome

When: Saturday, September 26th from 4:00 - 5:00 pm Mountain time

Isani Singh is a student at Harvard University and has published work in the Journal of the American College of Cardiology, as well as presented at the American College of Cardiology in 2017 and the international Turner syndrome conference in 2016.

In this session, Isani will discuss Liver Involvement in Turner syndrome and results of studies surrounding increased risk of liver disease. Isani will discuss ways to decrease risk and maintain proper liver function.

Sep 26, 2020

15.00

Fitness and exercise tips for those with Osteopenia/Osteoporosis

When: Saturday, September 26th at 10:00 am Central Time

​Sarah Brown will discuss how Turner Syndrome can affect the proper growth and development of the skeletal system. This can result in increased risk of scoliosis (“S” or “C” shaped curvature of the spine) and kyphosis (forward rounding of the thoracic spine).  Affected women are also at greater risk of developing osteoporosis, which results in weakened, brittle bones. Due to this, care needs to be taken when considering exercise prescriptions to manage the condition and prevent fractures. Specific bone strengthening exercises and postural education for prevention of spinal stress will be introduced

Sep 26, 2020

TSSUS Chasing Butterflies Walk---Sugar Land, TX

Postponed for now. Date to be determined.

 

Join Us!

When: September 26, 2020. Registration begins at 9:00.

Where: Sugar Land Memorial Park, 15300 University Blvd, Sugar Land, TX 77479

We hope to see you there!

Sep 26, 2020

$10.00

Ride With The Butterflies

Postponed for now. Date to be determined,

Come join us to show support and awareness of TS!

When: Saturday, September 26, 2020, at 9:00 am

Where: South Side Park, 2115 6th St, Sacramento, CA 95818

There will be vendors, a bicycle show, live entertainment and speakers. 

Sep 27, 2020

$15.00

Donating your body to science

When: Sunday, September 27th from 2:00 pm - 3:30 pm Central time

In this session, Dr Siddharth Prakash will discuss the important role of autopsy to understand the causes of death in TS, explain how new minimally invasive methods may expand the frequency of autopsy and provide a blueprint to raise awareness about the value of organ and tissue donation for research in the TS community. Adults with TS face an increased risk for early death that is not completely understood.

Oct 10, 2020

15.00

Fitness and exercise tips for those with Osteopenia/Osteoporosis

When: October 10th from 10:00 am - 11:00 pm Central time

Sarah Brown will discuss how Turner Syndrome can affect the proper growth and development of the skeletal system. This can result in increased risk of scoliosis (“S” or “C” shaped curvature of the spine) and kyphosis (forward rounding of the thoracic spine).  Affected women are also at greater risk of developing osteoporosis, which results in weakened, brittle bones. Due to this, care needs to be taken when considering exercise prescriptions to manage the condition and prevent fractures. Specific bone strengthening exercises and postural education for prevention of spinal stress will be introduced

Oct 17, 2020

Gliding With Your Golden Butterfly Wings

When: Saturday, October 17th from 2-3 Central Time

Virtual opportunity for adults with TS 60 and up to connect with each other. Meet some of our long time golden butterflies and walk away with lifelong friendships!

Oct 17, 2020

15.00

Metabolic Syndrome and Type 2 Diabetes: Risks in adults with Turner Syndrome

When: Saturday, October 17th from 1:00 - 2:30 Pacific time

Mitch Geffner. M,D,. will discuss metabolic syndrome and how it can affect those with TS. Metabolic Syndrome describes a group of conditions, including increased blood pressure, high blood sugar, excess body fat around the waist, and abnormal cholesterol or triglyceride levels. These conditions, common in Turner syndrome, often occur together, and may increase the risk of heart disease, stoke and diabetes.

Oct 18, 2020

15.00

Don’t let fertility define you

When:Sunday, October 18th at 10:00 am Central Time

 

Emily Pardy will discuss what fertility means to you? Our culture tends to equate fertility with femininity. How can you find the true meaning of your womanhood beyond your dreams of motherhood? How do you cope with the boundaries and relationships as peers enter into parenthood? Learning how to your childbearing years with confidence can feel impossible at times. But, you are so much more than your diagnosis! It’s time to recapture your identity and fell proud of the woman you are, regardless of your fertility limitation.

Oct 24, 2020

TSSUS Chasing Butterlies Walk-- Brooksville, FL

Join Us!

When: October 24, 2020. Registration begins at 9:00 AM and the walk will start at 10:00 AM. 

 

Where: Tom Varn Park, 301 Darby Lane, Brooksville, FL 34601.

We hope to see you there!

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The Turner Syndrome Society's mission is to

advance knowledge, facilitate research, and support all those touched by Turner syndrome.

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