Programs & Services
TSSUS Turner Syndrome
Chasing Butterflies Walks
Chasing Butterflies Walks (CBW) are national signature fundraising events for TSSUS, and they support our mission to advance knowledge, facilitate research, and provide support for everyone touched by Turner syndrome (TS).
TSSUS Annual Educational TS Conference The National Turner Syndrome Conference offers patients and families a unique opportunity to connect with others in the TS community, attend educational sessions, join youth groups, get health screenings and much more.
Personal Help: Discuss your needs with TSSUS staff. We are always happy to answer questions or listen to your concerns and encourage you. Please call 800-365-9944 or email us.
TSSUS advances research in areas the TS community identifies as important. We maintain a scientific advisory board, facilitate study recruitment, maintain a national registry of individual’s health and contact information, produce research articles and assists researchers with various needs. Please support TS research.