Personal Help

Personal Help: Discuss your needs with TSSUS staff. We are always happy to answer questions or listen to your concerns and encourage you. Please call 800-365-9944 or email us.

Online & In-Person Events

We offer monthly and quarterly Zoom Generational calls, host social and educational events in person across the nation, and host online educational webinars.

TSSUS on Facebook

Facebook Private Groups: Need advice or encouragement or want to share good news with others that can relate? TSSUS Private FB groups are the answer.

TS Conference

TSSUS Annual Educational TS Conference The National Turner Syndrome Conference offers patients and families a unique opportunity to connect with others in the TS community, attend educational sessions, join youth groups, get health screenings and much more.

Research

TSSUS advances research in areas the TS community identifies as important. We maintain a scientific advisory board, facilitate study recruitment, maintain a national registry of individual’s health and contact information, produce research articles and assists researchers with various needs. Please support TS research.

Butterfly Connections

New to TS? Stumped on what to do? Interested in talking to someone that may know how you feel? Contact us and we will connect you with an expert peer volunteer.

Peer-Led Support Groups

Online and in-person meetings that connect you with others so you may support one another. Some groups meet according to age and some by location, they all are informal and respectful. Find support groups in your area here (Support Groups), or here (Event Calendar).

Chasing Butterflies Walks

Chasing Butterflies Walks (CBW) are national signature fundraising events for TSSUS, and they support our mission to advance knowledge, facilitate research, and provide support for everyone touched by Turner syndrome (TS).

Scholarships

We offer 4 types of Scholarships: Membership, Life Enrichment, College, and Conference Registration. Find out about who is eligible and details about what each scholarship covers.

Obituaries

Memorials. Butterfly Wings to Angel Wings. The world changes from year-to-year and our lives from day-to-day, but the love and memory of you shall never pass away.