Member and Donor Privacy Policy
Effective Date: May 11, 2026
1. Our Commitment to Privacy
The Turner Syndrome Society of the United States (TSSUS) values your privacy and is committed to protecting the personal information of our members, donors, volunteers, and stakeholders. We collect and use personal information only to support our mission, communicate with supporters, and operate our programs and services.
2. Information We Collect
We may collect the following types of personal information: Contact information (name, address, email, phone); Donation and payment information; Event registration details; Communication preferences; Website usage data (such as IP address and cookies); and any information voluntarily provided to us.
3. How We Use Your Information
We use personal data to process donations and provide receipts, communicate about programs and events, manage memberships, respond to inquiries, improve services, and comply with legal obligations.
4. Data Sharing and Third Parties
TSSUS does not sell, rent, or trade personal information. We may share information with trusted service providers such as payment processors, email platforms, and event tools. These providers are required to maintain confidentiality and protect your information.
5. Data Security
We implement reasonable administrative, technical, and physical safeguards designed to protect personal information from unauthorized access, use, or disclosure.
6. Data Retention
We retain personal information only as long as necessary to fulfill the purposes outlined in this policy and to comply with legal and financial requirements.
7. Texas Privacy Rights (TDPSA)
If you are a Texas resident, you have certain rights under the Texas Data Privacy and Security Act (TDPSA), including the right to confirm whether we process your personal data, access your personal data, correct inaccuracies, delete personal data, and opt out of certain data processing activities. You may exercise these rights by contacting us. We will respond in accordance with applicable law.
8. Your Privacy Rights
Depending on your location, you may have rights to access, correct, or delete your personal information and to opt out of communications.
9. Opt-Out Policy
You may opt out of receiving communications from TSSUS at any time by clicking the unsubscribe link in emails, replying ‘STOP’ in SMS messages, or contacting us directly.
10. Changes to This Policy
We may update this policy periodically. Updates will be posted with a revised effective date.
11. Contact Us
Turner Syndrome Society of the United States
12620 FM 1960 W Rd, Ste A4#210
Houston, Tx 77065
Phone: 800.365.9944
Email: tssus@turnersyndrome.org