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Turner Syndrome will Challenge You by Rebecca Niemy
I should consider myself lucky, and I am. I’m incredibly lucky. I made it to the other side, which is a miracle to begin with. So yes,...


This is an Amazing Community! by Aleah Heffron
Hi, my name is Aleah. I’m a 19-year-old woman with Turner syndrome (TS). I was born in a small town in Michigan called Battle Creek. I...


Find Those Who Love You for Who You Are by Tracey Costes
My TS story will always be linked to a birthday. Have you ever had a birthday where, due to things out of your control, it doesn’t go as...


I'm Living Proof that We can Live Full and Vibrant Lives - by Madison Falvo
My name is Madison Falvo, and I am 20 years old. I was diagnosed with Turner syndrome (TS) at birth when my doctor noticed my size and my...


Butterflies are Warriors! by Tatiana Barrera
Hi! My name is Tatiana, and I am a TS butterfly! I was diagnosed at birth. My pediatrician noticed my hands and feet were swollen and...


Asking for Help is Self-Awareness Skill - by Chandler Isom
Hello! My name is Chandler Isom. I am 24 years old, and I have mosaic Turner syndrome (TS). I was diagnosed at 18 months old. I am a...


There Is So Much More Under the Scary - by Ellie Geppert
Hi! I’m Ellie. I’m 16, a sophomore in high school, and was diagnosed with classic Turner syndrome (TS) at birth. If you’re someone who’s...


TSSUS Board Member Spotlight, Introducing Jeanna Lee – TSSUS Board Chair
I am a native Floridian who was diagnosed with mosaic Turner syndrome (TS) at age 13. When I was diagnosed, due to cultural expectations,...


Our Community Understands and Will Fill You with More Hope Than Fear - by Molly Cardosi
“She has Turner syndrome - What is That?” Technically, it is a condition that results when one of the X chromosomes is missing or...


God Has a Plan for You - by Chrissi Baldridge
God has a plan. We were never promised this life would be easy and man if it does not seem if some of us get the extra helping of...


Learning to Love Myself - by Ontrinette Franklin
Hi everyone, my name is Ontrinette Franklin and I'm from Georgia. I entered foster care when I was around 3 years old. I've been in four...


Persistence and Self-Advocacy Allows Me to Serve in the Peace Corps in Africa - by Michaela Wolfinger
I’m currently serving in the Peace Corps with Turner syndrome (TS). There are many reasons why I decided to serve, including the...


She Battled with Faith, Fire, and Grace - Cassandra Mae "Cassie" Garrett, by her sister, Jennifer Jones
Cassandra Mae "Cassie Garrett, February 2, 1986 - December 20, 2020 Cassandra “Cassie” Mae Garrett was born February 2, 1986. She grew up...


I Grew Up Always Knowing . . . by Samantha Mosher
I was diagnosed with Turner syndrome (TS) at two weeks old. The doctor noticed my hands and feet were puffy from edema and ordered a...


I Think of Myself as Lucky by Emilija Sipaviciute
Ok, get ready because I’m basically going to share my entire life story. There’s so much I want to say, I don’t even know where to begin!...


I’m a Blessed Adoptive Mother of Four by Marianne Parrish
I had never heard of Turner syndrome (TS) until I was diagnosed at age 17 with the mosaic version. I had already broken five bones at...
























