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Evolving Needs, Evolving Care, Evolving Diagnosis – by Bethany Weddle
Childhood: Early Awareness and Planning. From the moment I was born, my parents knew my Turner syndrome(TS) diagnosis would mean lifelong monitoring - that my needs would evolve as I grew. They were right. What no one fully explained was how much those needs would change, or how deeply each stage of life would reshape my understanding of myself. As a child, care revolved around growth and heart health. My parents coordinated appointments, tracked milestones, and balanced a
