top of page

Terms of Service

Effective Date: May 11, 2026

​

1. Acceptance of Terms

By accessing or using the Turner Syndrome Society of the United States (TSSUS) website, registering for events, making donations, or participating in programs, you agree to these Terms of Service. If you do not agree, please do not use our services.

​

2. Use of Website and Services

You agree to use TSSUS services for lawful and charitable purposes only. You may not use the site for fraudulent or misleading activities, attempt to gain unauthorized access, disrupt or interfere with functionality, or upload harmful or malicious content.

​

3. Donations and Payments

All donations are voluntary and non-refundable unless required by law. TSSUS uses secure third-party payment processors. Donors are responsible for ensuring the accuracy of their information. Tax receipts will be provided in accordance with IRS requirements.

​

4. Event Registration and Participation

Registration may be required for certain programs or events. TSSUS reserves the right to modify or cancel events. Participants agree to follow all guidelines and acknowledge risks associated with participation to the extent permitted by law.

​

5. Intellectual Property

All content including logos, educational materials, publications, and website content is the property of TSSUS and may not be reproduced, distributed, or reused without written permission.

​

6. User Content

If you submit content such as testimonials, photos, or stories, you grant TSSUS a non-exclusive, royalty-free license to use, publish, and display such content for mission-related purposes. You confirm that you have the right to share such content.

​

7. Privacy

Your use of services is governed by the TSSUS Privacy Policy.

​

8. Third-Party Services

TSSUS may use third-party platforms such as payment processors, email systems, and event tools. TSSUS is not responsible for the practices of those third parties.

​

9. Disclaimer of Warranties

Services are provided ‘as is’ and ‘as available.’ TSSUS does not guarantee uninterrupted or error-free operation, accuracy, or completeness of content.

​

10. Limitation of Liability

To the fullest extent permitted by law, TSSUS shall not be liable for indirect, incidental, or consequential damages arising from the use of its services.

​

11. Indemnification

You agree to indemnify and hold harmless TSSUS and its leadership, employees, and volunteers from any claims arising from your use of services or violation of these Terms.

​

12. Compliance with Texas Law

These Terms shall be governed by the laws of the State of Texas. Any disputes shall be resolved in the appropriate courts located within the State of Texas.

​

13. Medical Disclaimer

Information provided by TSSUS is for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of qualified healthcare providers regarding medical conditions.

​

14. Photo and Media Release

By participating in TSSUS events, you consent to the use of photographs, video, and audio recordings for promotional and educational purposes unless you notify TSSUS in writing prior to participation.

​

15. Minor Participation

If a participant is under the age of 18, a parent or legal guardian must provide consent and assumes responsibility for the minor’s participation.

​

16. Changes to These Terms

TSSUS may update these Terms from time to time. Updates will be posted with a revised effective date. Continued use of services constitutes acceptance of those changes.

​

17. Contact Information

Turner Syndrome Society of the United States
12620 FM 1960 W Rd, Ste A4#210
Houston, TX 77065
Phone: 800.365.9944
Email: tssus@turnersyndrome.org

TSSUS Logo

The mission of the Turner Syndrome Society of the United States is to advance knowledge, facilitate research, and support all those touched by Turner syndrome.

Butterfly-E-[Converted].png
Charity Navigator
NORD_MembershipLogo_2026_PLAT.png
candid-seal-gold-2025.png
  • Facebook
  • X
  • YouTube
  • Pinterest
  • Instagram
12620 FM 1960 W Rd, Suite A4 #210 Houston, TX 77065, 1-800-365-9944

501(c)(3) nonprofit organization

 EIN is 41-1596910. 

2026 All Rights Reserved

Disclaimer: The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images and information, contained on or available through this web site is for general information purposes only.

bottom of page