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One Tiny Heartbeat at a Time
My Turner syndrome story began in 1995. When I was 26 weeks pregnant, I went in for an AFP Plus / Triple Screen Test. My test results...
Foster to Adopt - One Butterfly's Path to Motherhood
Ever since I was a little girl, I dreamed about being a mother. My mother often tells a story about when I was growing up. I would gather...
Don't Be Discouraged; Live Your Spectacular Life!
I was diagnosed back in 1997 when not much was known about Turner syndrome. I did receive a prenatal diagnosis while doctors were looking...
Cream of the Crop
We're the Cream of the Crop, One out of every 2,000 are we (at least that’s the number given to me). Each unique in her own way with her...
There Were Tears, Mostly of Joy
We all live life with mysterious circumstances... why am I this or that... The chief mystery in my daughter's life has found a name -...
I Enjoy the Bond We "Butterfly Sisters" Share
I am one in 2,000. I am one of the 2 percent of babies with Turner syndrome who are born alive. My TS story actually starts before I was...
Is Social Anxiety Holding You Back?
Many people feel socially awkward on occasion when faced with certain situations or people; it’s natural. For those who truly struggle...
It's Okay to Be Unique and to Love Who You Are
I was diagnosed with Turner syndrome when I was born. In my life, I have had to deal with so much. In middle school and high school, it...
My Parents Did as They Were Told - They Took Me Home And Loved Me
I was born outside of Philadelphia in 1965 - in a time before amniocentesis, ultrasounds, and genetic testing. My parents were of normal...
Adoption Means We Get to Give Someone a Second Chance at Life
The three most important dates in my life are April 26, 2009, January 9, 2010 and March 17, 2017. April 26th was the day my husband...
Who Owns the Story?
“My endocrinologist says I have a 4 percent risk of fracture on the hips and a 2 percent risk of fracture in the spine. S/he was only...
I Focus on What I Have, Not What I Don't Have Because of Turner Syndrome
I was born in Ohio in 1962. I had some feeding problems as a baby, frequent ear infections, and I was small for my age. I was a normal...
Sometimes It Feels Like There Is No Light At The End Of The Tunnel
See this picture of me and my amazing beautiful butterfly Gracie, who is 10 years old? As the old saying goes “A pictures says a...
Now I Just Think of Myself as a Mermaid
Hello Everyone. My Name is Rebecca, but I prefer Becky. I guess my story starts when I was 12. I was going to the doctor for a routine...
Your Daughter is Perfectly Created
My name is Stephanie Weaver. My daughter, Alyssa Cadence, was diagnosed with Turner syndrome at birth. The day of her birth was...
My Hardships and Blessings
Hi, my name is Carrie Odom. I was born and raised in Fort Walton Beach, Florida, and have one older sister. I was diagnosed with Turner...
