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I Am One Out of 2,000
I am one out of 2,000. Imagine having your first baby girl and some of the first words the doctor says are, "She probably has Turner...
We Treasure and Enjoy Her Every Day
When our newborn daughter was diagnosed with Turner syndrome, my husband and I were confused and sad. While we knew God's plan for her...
A Mother's Fight for Her Daughter's Education
My daughter, Missy, is a sweet 11-year-old who loves to read and help animals. She wants to be a veterinarian when she grows up. Since...
Carly Joy Goes to the Capital
Today’s blog post is a little different – it’s actually two posts in one, both about a pretty amazing young girl named Carly Joy Bozym,...
Working in the Theater, On the Way to Independence
My name is Emily Limbach and I have Turner syndrome. I was diagnosed before birth when my birth mother had an amniocentesis after the...
We Helped Her Understand She Was Not Alone
My name is Jacquelyn. I am 35 years old and work as an administrative assistant. This is my story. I have known that I have Turner...
It All Seems Worthwhile
A long time ago (April 10, 1955) in a land far, far away (Miami Beach, Florida) I was born. I had swollen hands and feet and this weird...
I Wouldn't Change Things if I Could
My name is Holly, and I’m a 22 year old college student. I was diagnosed with Turner syndrome at 18 months old. The first time I met...
Your Life is So Valuable
My name is Brooke Staton. I'm currently a freshman in college. I'm majoring in diagnostic cardiac sonography. I'm so excited to see what...
Avery is a Fighter; She's Our Hero!
After beating the odds with a large, septated, cystic hygroma, Avery Elizabeth was born in June of 2009. In the womb, Avery had many...
Do Not Label Me
I was 36, and thought my child bearing days were over. I had endometriosis and had not had the easiest pregnancies or births previously...
We All Have Our Own Stories to Tell; This Is Mine
Greetings my sisters. I know we all have our own stories to tell... this is mine. Like all of you, we have our ups and downs. I truly...
A Light to Everyone She Meets
Kiersen was born in 2006 in distress. After an emergency c-section, she was taken to the NICU where it was determined she had an...
Every Sunrise Is More Beautiful Than Ever
February is Turner Syndrome Awareness Month. I would like to kick it off by sharing my story. It is personal, but I share it for...
Unlikely "Twins" Near the Twin Cities
It was a routine field trip. The school bus ride, along with my friend and colleague, Amanda Ogren, was cold as we took a group of...
Harper Daisy Prince . . ."Hurricane Harper"
My name is Kimberly Prince, and I'd like to share our story about our daughter, Harper Daisy Prince. Harper was special right from the...
