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A Heartfelt Plea from the TSSUS President
A few days ago, we received a call from a woman who was grieving the loss of her son’s new wife – her young daughter-in-law who suddenly...
When a Mother Knows
The other day I mentioned that Ella had Turner Syndrome in an Instagram post. I received so much positive feedback and questions that I...
Life isn't Always Easy, But it's Always Worth It!
Growing up, I always knew there was something different about me. I had a major surgery when I was five years old to correct a kidney...
On Angel Wings, She Flies
This is the hardest thing that we will ever share, but we share our story for two reasons: The most important is to honor the love and...
An Emotional Diagnosis
When I was 16 weeks pregnant, a blood test revealed elevated protein levels. Initially, doctors suggested this might be an indication of...
We Might have Bumps Along the Way, but We don't have to be Alone
I sat at our light-brown, circle, kitchen table. My family was smiling and looking at me reassuringly. It was nighttime and the kitchen...
A Single Dad Counts His Blessings
Here is my story. I live in Houston, Texas, and I’m single father raising my daughter, Taylor Rae, who is 3 years old. Taylor has classic...
When Open Heart Surgery Opens Your Heart
My whole life I knew I was different; from the moment I was born to the day I was diagnosed with Turner syndrome. A disorder only found...
One Tiny Heartbeat at a Time
My Turner syndrome story began in 1995. When I was 26 weeks pregnant, I went in for an AFP Plus / Triple Screen Test. My test results...
Foster to Adopt - One Butterfly's Path to Motherhood
Ever since I was a little girl, I dreamed about being a mother. My mother often tells a story about when I was growing up. I would gather...
Don't Be Discouraged; Live Your Spectacular Life!
I was diagnosed back in 1997 when not much was known about Turner syndrome. I did receive a prenatal diagnosis while doctors were looking...
Cream of the Crop
We're the Cream of the Crop, One out of every 2,000 are we (at least that’s the number given to me). Each unique in her own way with her...
There Were Tears, Mostly of Joy
We all live life with mysterious circumstances... why am I this or that... The chief mystery in my daughter's life has found a name -...
I Enjoy the Bond We "Butterfly Sisters" Share
I am one in 2,000. I am one of the 2 percent of babies with Turner syndrome who are born alive. My TS story actually starts before I was...
Is Social Anxiety Holding You Back?
Many people feel socially awkward on occasion when faced with certain situations or people; it’s natural. For those who truly struggle...
It's Okay to Be Unique and to Love Who You Are
I was diagnosed with Turner syndrome when I was born. In my life, I have had to deal with so much. In middle school and high school, it...
