The TSSUS Blog shares personal stories about TS

I Know Karolyn will do Great Things! - by Becky Bishop

Karolynn is my incredible little miracle, my gift from God. She was born with hypoplastic left heart syndrome, which is 100% fatal at 6...

Take It One Day at a Time - by Kelsey Reese

Hi, I’m Kelsey Reese and I am 29 years old. Ii love to read and watch tv, and my Zumba classes to exercise. The Nancy Drew series are my...

I Survived Aoartic Disection - by Lauren Liska

Hi! I'm Lauren and I have Turner syndrome (TS). Growing up, doctors found early on that I had a bicuspid aortic valve and was small for...

We are Resilient! - by McKenzie Brewer

Hey! I'm McKenzie and I was diagnosed with Turner Syndrome at 4 years old. I am now 27. I recently graduated with a bachelor's degree in...

Live Life at Your Own Pace - by Marissa Meling

My name is Marissa. I am 31 years old. When I was 7, I was diagnosed with Turner syndrome (TS). I love spending time with my friends and...

Attitude Can Really Make or Break You in Life - by Nicole "Nikki" Gregor

Hi! I’m Nikki and I was diagnosed with Turner syndrome (TS) at birth in December of 1983 (yes, this means I am turning 40 this year –...

My Dreams Came True - by Emily Rawls

Hi there! My name is Emily Rawls and I wanted to take this opportunity to share my Turner syndrome story in hopes of inspiring others...

She Is Our Little Princess - by Elizabeth Ugalde

Hello. I am a 37-year-old mother of a wonderful 4-year-old daughter named Jocelyn Ugalde. My pregnancy was very stressful because I had...

It's Okay to Ask for Help - by Payton Wyatt

Hi! My name is Payton Wyatt, and I was born with Turners syndrome (TS). I started with the growth hormone treatments at age 6. I have...

Who Else Loves Reading, Crafting, and Hallmark? - by Brandy Dazy Whitehead

Hi! This is Brandy from Greencastle, Indiana. I’m 48 years old and have been married to my husband Ryan for 23 years. We have 2 children...

10 1113 14

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

I Know Karolyn will do Great Things! - by Becky Bishop

Take It One Day at a Time - by Kelsey Reese

I Survived Aoartic Disection - by Lauren Liska

We are Resilient! - by McKenzie Brewer

Live Life at Your Own Pace - by Marissa Meling

Attitude Can Really Make or Break You in Life - by Nicole "Nikki" Gregor

My Dreams Came True - by Emily Rawls

She Is Our Little Princess - by Elizabeth Ugalde

It's Okay to Ask for Help - by Payton Wyatt

Who Else Loves Reading, Crafting, and Hallmark? - by Brandy Dazy Whitehead

Recent Posts

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Anything is Possible! by Lillian Moffett

Archive

Search By Tags

Follow Us