Search
Everyone is Wonderfully Different by Melissa Olmsted
My name is Melissa Olmsted, and I am 52 years old. I was diagnosed at the age of 5 after two years of my mom taking me to doctors, being...
30 Years of Service and Advocacy - by Rosemary Morris
Hello, my name is Rosemary Starr Morris, and I was diagnosed with Turner syndrome (TS) in 1979 at the age of 17. I struggled a great deal...
Giving a Voice to the Voiceless - by Tia Inglefield
I was diagnosed with Turner syndrome (TS) at 6 weeks old. I had puffy hands and feet and a webbed neck at birth, and doctors immediately...
Her Light Shines So Bright - by Kimberly Prince
Our beautiful butterfly, Harper, was diagnosed at 4 years old and is now 8. While pregnant with her, we had the genetic testing done and...
The Bond of "Butterfly Sisters" by Renee Nowacki
I am one in 2,000-4,000. I am one of the 2% of babies with Turner syndrome (TS) who are born alive. My TS story actually starts before I...
The Lonely Road to Our Turner Syndrome Diagnosis by Janine Reyes
In 2005, I had a 3-year-old son and an 8-month-old daughter when I found out the 15 week baby I was carrying was not okay. They said she...
I Appreciate the LIttle Victories by Chandler Isom
Hi there! My name is Chandler Isom. I am a 22 year-old college student, aspiring teacher, daughter, sister, friend, dancer (for fun), and...
I'm a Hot Mess Momma - by Bethany Weddle
My name is Bethany Weddle (Wood). There are so many things that come to mind when I think about sharing my life story and especially the...
Where Are My Disney Fans? by Morgan Steele
Hello! I'm Morgan, a 21-year-old college junior majoring in Public Relations at UTA. I was diagnosed with mosaic Turner syndrome at age...
My Inspiration is You - by Deborah Rios
My TS journey began nearly 16 years ago. I started as a part-time employee at the Turner Syndrome Society of the United States (TSSUS)....
My Unlikely TS Story - by Becky Brown
As my 6th year work anniversary just passed, I thought I would share My TS Story with you. Full disclosure – I don’t have Turner...
Turner Syndrome is a Puzzle We Are Collectively Solving - by Cindy Scurlock
Years ago, my sister said, “You’re so lucky to have a job that you love and to know that at the end of every day you’ve helped people and...
TS Has Made Me More Patient and Empathetic by Danielle Kirkwood
In honor of Turner Syndrome Awareness Month, I’ve decided to share a small part of my experience. The day before I started 3rd grade, my...
I Define What Turner Syndrome Is by Caitlin Sullivan
Hi all! My name is Caitlin Sullivan, and I am a 25-year-old woman with Turner syndrome (TS) from Massachusetts. I can honestly say I love...
I Decided I Would No Longer Hide my Turner Syndrome - by Deimante Sefleryte
Hi, my name is Deimante, and I am from a small town in Lithuania in Eastern Europe. I got the diagnosis of Turner syndrome (TS) as a...
Copy of Foster to Adopt - One Butterfly's Path to Motherhood - by Elizabeth Fontenot
Ever since I was a little girl, I dreamed about being a mother. My mother often tells a story about when I was growing up. I would gather...
