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A Whirlwind of Testing by Nancy Blake
Our daughter, Liza, was diagnosed with Turner syndrome (TS) at birth. It was a whirlwind of echocardiograms and testing over those first...
She Has So Much Joy - by Alisha Thing
I am a mom of a daughter with Turner syndrome (TS) and this is Delenna’s story. It started when I was pregnant with her. My husband and...
I Hope My Story is an Inspiration - by Angela Hogle
Hello, my name is Angela Hogle. I was diagnosed with Turner syndrome (TS) when I was in second grade. I wanted to share a little of my...
Alana's Remarkable Journey - by Crystal Peek
My daughter Alana was diagnosed in utero at 20 weeks. She had a significant cystic hygroma and an abnormal kidney on the ultrasound which...
Everyone is Wonderfully Different by Melissa Olmsted
My name is Melissa Olmsted, and I am 52 years old. I was diagnosed at the age of 5 after two years of my mom taking me to doctors, being...
30 Years of Service and Advocacy - by Rosemary Morris
Hello, my name is Rosemary Starr Morris, and I was diagnosed with Turner syndrome (TS) in 1979 at the age of 17. I struggled a great deal...
Giving a Voice to the Voiceless - by Tia Inglefield
I was diagnosed with Turner syndrome (TS) at 6 weeks old. I had puffy hands and feet and a webbed neck at birth, and doctors immediately...
Her Light Shines So Bright - by Kimberly Prince
Our beautiful butterfly, Harper, was diagnosed at 4 years old and is now 8. While pregnant with her, we had the genetic testing done and...
The Bond of "Butterfly Sisters" by Renee Nowacki
I am one in 2,000-4,000. I am one of the 2% of babies with Turner syndrome (TS) who are born alive. My TS story actually starts before I...
The Lonely Road to Our Turner Syndrome Diagnosis by Janine Reyes
In 2005, I had a 3-year-old son and an 8-month-old daughter when I found out the 15 week baby I was carrying was not okay. They said she...
I Appreciate the LIttle Victories by Chandler Isom
Hi there! My name is Chandler Isom. I am a 22 year-old college student, aspiring teacher, daughter, sister, friend, dancer (for fun), and...
I'm a Hot Mess Momma - by Bethany Weddle
My name is Bethany Weddle (Wood). There are so many things that come to mind when I think about sharing my life story and especially the...
Where Are My Disney Fans? by Morgan Steele
Hello! I'm Morgan, a 21-year-old college junior majoring in Public Relations at UTA. I was diagnosed with mosaic Turner syndrome at age...
My Inspiration is You - by Deborah Rios
My TS journey began nearly 16 years ago. I started as a part-time employee at the Turner Syndrome Society of the United States (TSSUS)....
My Unlikely TS Story - by Becky Brown
As my 6th year work anniversary just passed, I thought I would share My TS Story with you. Full disclosure – I don’t have Turner...
Turner Syndrome is a Puzzle We Are Collectively Solving - by Cindy Scurlock
Years ago, my sister said, “You’re so lucky to have a job that you love and to know that at the end of every day you’ve helped people and...
