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We Can Be Successful and Accomplish So Much - by Sydney Hoi

Hi, my name is Sydney Hoi, and I am 26 years old. I was diagnosed with Turner syndrome (TS) at birth. I had lymphedema in my hands and feet that led to testing to confirm the diagnosis. I had hip dysplasia that corrected on its own with double diapering. At 1 year old, I surgery to correct vesicoureteral reflux, that caused a kidney infection. I had growth hormone treatment from the age of 4 to 14, and I am now 5 feet tall.

I did well in school, although math was a struggle at times. With help and practice I overcame that. It was a tough journey getting my driver’s license. My poor sense of direction and anxiety made it difficult. Till this day I only drive in my small town when I’m by myself. I’m slowly trying to expand that, but I still consider it a big accomplishment when it happens.

I attended college and earned my BSN. Being away from home at college during the weekdays gave me the most anxiety I have ever experienced in my life. My parents helped me through it; they drove me home on the weekends, and my mom called me 4 times a day.

I have been a nurse for almost 3 years now on a medical surgery unit. It gives me such a sense of accomplishment when I can make a patient smile. The biggest joy in my life are my cats; they bring me so much happiness and comfort. Although my diagnosis is a part of me, it’s just a small part, and I don’t let it define me. I hope my story will bring encouragement to girls with Turner syndrome and their families. We can be successful and accomplish so much.


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