The TSSUS Blog shares personal stories about TS

I'm Thankful for Early Intervention by Audrey Lorigan

Shortly after I was born, I was diagnosed with Turner syndrome (TS). The doctors knew something wasn't completely normal as I had swollen...

My Pregnancy TS Roller Coaster by Alyssa Kozura

Hi everyone! I’m a proud mama of an (almost) 1 year old beautiful Ring X TS butterfly! My main point in sharing our story is to help...

We All Have Unique Strengths and Talents by Isabella Manrique

Hi! My name is Isabella and I’m 25 years old. I was diagnosed with Turner syndrome (TS) when I was a couple of months old. My grandmother...

I'm a Full-On Theater Kid! by Emilija Sipaviciute

Ok, get ready because I’m basically gonna share my entire life story (and bear with me because this is a long one, LOL!). There’s so much...

A Flood of Emotions - by Sarah Bauer, TSSUS Board Chair-Elect

My name is Sarah Bauer and I am a mother to an 11 year old girl with Mosaic Ring Turner Syndrome. My journey to serve on the TSSUS Board...

Moms, Just Follow Your Gut - by Dawn Aye, TSSUS Board Member

Hi, my name is Dawn Aye. I live in a small blinking light town in Montana. My closest “small town”, doctor, hospital, Walmart and fast...

And though She is but Little, She is Fierce - by Adriana Garcia

My journey began when I was 12 and my twin sister and I had a doctor's appointment with our pediatrician to get our 12-year-old shots to...

Turner Syndrome will Challenge You by Rebecca Niemy

I should consider myself lucky, and I am. I’m incredibly lucky. I made it to the other side, which is a miracle to begin with. So yes,...

This is an Amazing Community! by Aleah Heffron

Hi, my name is Aleah. I’m a 19-year-old woman with Turner syndrome (TS). I was born in a small town in Michigan called Battle Creek. I...

Find Those Who Love You for Who You Are by Tracey Costes

My TS story will always be linked to a birthday. Have you ever had a birthday where, due to things out of your control, it doesn’t go as...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

I'm Thankful for Early Intervention by Audrey Lorigan

My Pregnancy TS Roller Coaster by Alyssa Kozura

We All Have Unique Strengths and Talents by Isabella Manrique

I'm a Full-On Theater Kid! by Emilija Sipaviciute

A Flood of Emotions - by Sarah Bauer, TSSUS Board Chair-Elect

Moms, Just Follow Your Gut - by Dawn Aye, TSSUS Board Member

And though She is but Little, She is Fierce - by Adriana Garcia

Turner Syndrome will Challenge You by Rebecca Niemy

This is an Amazing Community! by Aleah Heffron

Find Those Who Love You for Who You Are by Tracey Costes

Recent Posts

This Is Our Daughter's Story - by Leslie Leber

I'm Confidently Facing My Future Now - by Naveh Riles

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

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