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Getting The Most Out Of This Short Life - by Andrea Pflughoeft
February has a lot of meaning to me and always has. Not only do my boyfriend and I both celebrate our birthdays this month, but it’s also...


I'm a Registered Nurse, and I Didn't Even Catch It! - by Danielle Smith, TSSUS Board Member
As a registered nurse, patient advocate, and mother of a daughter (Isabella, 24) diagnosed with TS as an infant, I know firsthand how...


Diagnosed with TS a Year After My Wedding by Sol Ramirez-Rios
Hi, my name is Sol, and I am 37 years old. I was diagnosed with Turner syndrome (TS) at the age of 24. I met my now-husband at the age of...


TSSUS has Given Me the Best Friends Ever! by Katlin Verdin
Hello! My name is Katlin Verdin, and I’m a 22 year old woman who was diagnosed with Turner syndrome (TS) at 9 years old . I currently...


I've Always Found a Way by Abby Edgar
Hello, my name is Abby Edgar, and I am 43 years old. I was diagnosed with Turner syndrome (TS) when I was 15. I am the Head Athletic...


I Entered the World Happy and Healthy by Kenzie Boldt
Hello! My name is Kenzie. I’m 13 years old, and I was diagnosed with Turner syndrome (TS) when I was 3 days old. I love singing, reading,...


I Felt a Sense of Community - by Jeanna Lee, TSSUS Board Chair
I am a native Floridian who was diagnosed with mosaic Turner syndrome (TS) at age 13. When I was diagnosed, due to cultural expectations,...


My Story is a Happy One - by Brittany Byers
Hi, my name is Brittany Byers. I was diagnosed with Turners syndrome (TS) at age 10. It was sort of random. I was suddenly taking growth...


I Felt Isolated Until My First TSSUS Conference - by Bria Kelly, TSSUS Board Member
Hello! My name is Bria Kelly, and I’m a 26 year old woman who was diagnosed with Turner syndrome at birth. I currently reside in Erie,...


Every Butterfly Deserves to Soar! by Jean-Marie Andrews
This is Ezelle’s story: It was a beautiful journey of strength and creativity when my daughter, Ezelle, was diagnosed with Turner...