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The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo
My Turner syndrome (TS) story started when I was diagnosed at birth, and a lot of my youth was spent at the Children's Hospital in...
TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member
Hello TSSUS community! My name is Kristen McKenney and I have the privilege of serving on the board for the Turner Syndrome Society of...
I Choose to Always Stay in Gratitude - by Debra McMichael
Hi, my name is Debra and I just recently turned 45 years old. I live in Wisconsin. I was born here but have done my fair share of...
I Found an Outlet in Theater and Choir - by Emily Rose
Hi my Name is Emily Rose and I'm 19 years old. I was diagnosed with mosaic Turner syndrome (TS) at six weeks old. Growing up, this caused...
Teaching Special Education is the Path for Me - by Emily Jackson
Like so many, I was diagnosed with Turner syndrome (TS) before I was born. At the time, my parents were given what felt like horror...
The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown
Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...
Anything is Possible! by Lillian Moffett
My name is Lillian, I’m 24 years old and I have Turner syndrome (TS). My journey began when I was 8 years old. After lots of testing and...
If You Have IEP Questions, I'm Your Gal! - by Sarah Schneiderwent
My Turner syndrome (TS) journey started at birth. I was diagnosed right away. I had aortic stenosis and my first heart surgery at six...
Go For It, No Matter What - by Rayana Wilder
At around 12 years old, I was diagnosed with scoliosis and it was severe enough that it had to be surgically corrected. In the process of...
Writing is My Biggest Passion - by Haylee Christ
Hello! My name is Haylee, and this is my TS story! I am so grateful to be able to share it with you, and I pray that it can be a source...
Turn Your "I Cant's" into "I Can's"! - by Holly Keefe
It wasn’t until around my early teen years of 15 that my parents noticed I had neither grown nor started my period. Thanks to my mom, who...
My Mom is My Biggest Inspiration - by Daisy Araujo
This is me. My name is Daisy; I’m 33 years old. I was diagnosed with Turner syndrome (TS) at 5 years old. My pediatrician at the time...
Building Lasting Friendships: Social Skills for Individuals with Turner Syndrome and Nonverbal Learning Differences
by Becky Brown Friendships play a vital role in our well-being, offering support, companionship, and joy. However, for individuals with...
Autonomy Allowed Me to Imagine a Successful and Happy Adulthood - by Claire Harper
The support I received from my parents and my medical care providers when I was diagnosed with Turner syndrome (TS) changed my life. This...
I am Turner Strong! - by LaShelle Jennings
So this is 52! My name is LaShelle Jennings and today is my birthday! Here’s My TS Story. I was born in west Texas (small town outside of...
A New Diagnosis Can Be Isolating - by Elizabeth Dabrowski, MD, TSSUS Board Member
I have always loved children and advocating for the health of all children and the best possible medical care for everyone has become a...
