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My TS Story - Conference Edition, by Erica Melman
Hello. My name is Erica Melman and this is My TS Story – Conference Edition. My experience started at the kickoff event. When the Amanda...
This Is Our Daughter's Story - by Leslie Leber
Hello TS Community! We have been members of TSSUS for over ten years and by sharing our daughter’s story, want to pass on the support and...
I'm Confidently Facing My Future Now - by Naveh Riles
Hi, my name is Naveh. I am 28 years old. I was diagnosed with TS when I was born. From the beginning, I dealt with some health issues. I...
My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)
When Kim was born in 1964, we were told she wouldn't live beyond her first year. At that time the medical field knew practically nothing...
The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown
Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...
My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright
I’m sharing my story to give hope to those trying to expand their families or who are pregnant and need reassurance. My name is Holly and...
The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo
My Turner syndrome (TS) story started when I was diagnosed at birth, and a lot of my youth was spent at the Children's Hospital in...
TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member
Hello TSSUS community! My name is Kristen McKenney and I have the privilege of serving on the board for the Turner Syndrome Society of...
I Choose to Always Stay in Gratitude - by Debra McMichael
Hi, my name is Debra and I just recently turned 45 years old. I live in Wisconsin. I was born here but have done my fair share of...
I Found an Outlet in Theater and Choir - by Emily Rose
Hi my Name is Emily Rose and I'm 19 years old. I was diagnosed with mosaic Turner syndrome (TS) at six weeks old. Growing up, this caused...
Teaching Special Education is the Path for Me - by Emily Jackson
Like so many, I was diagnosed with Turner syndrome (TS) before I was born. At the time, my parents were given what felt like horror...
The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown
Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...
Anything is Possible! by Lillian Moffett
My name is Lillian, I’m 24 years old and I have Turner syndrome (TS). My journey began when I was 8 years old. After lots of testing and...
If You Have IEP Questions, I'm Your Gal! - by Sarah Schneiderwent
My Turner syndrome (TS) journey started at birth. I was diagnosed right away. I had aortic stenosis and my first heart surgery at six...
Go For It, No Matter What - by Rayana Wilder
At around 12 years old, I was diagnosed with scoliosis and it was severe enough that it had to be surgically corrected. In the process of...
Writing is My Biggest Passion - by Haylee Christ
Hello! My name is Haylee, and this is my TS story! I am so grateful to be able to share it with you, and I pray that it can be a source...
