The TSSUS Blog shares personal stories about TS

A New Diagnosis Can Be Isolating - by Elizabeth Dabrowski, MD, TSSUS Board Member

I have always loved children and advocating for the health of all children and the best possible medical care for everyone has become a...

Understanding Social Challenges in Turner Syndrome: Navigating Friendships and Connection

by Becky Brown Turner syndrome (TS) is a genetic condition that affects females and is caused by the complete or partial absence of one X...

Life is Better with Butterfly Friends! - by Stephanie Guy

She’s a Butterfly. Hello! My name is Stephanie, and I am a 44-year-old wife and mother who was diagnosed with classic Turner syndrome...

Turner Syndrome is a Learning Curve - by Jessica Carlough

Hi, everyone. My name is Jessica. I’m 33 and was diagnosed with classic Turner syndrome via amniocentesis in utero at around 20 weeks...

TSSUS is Like Family, and the Conference is Like Home - by Erica Melman

My name is Erica, and wow! Do I have a story for you about the TSSUS conferences. My first conference was back in 2011 in Buffalo, New...

This Girl Amazes Me! by Olivia Brambila's Grandmother

This story is about my granddaughter, Olivia, who turned 13 in December of last year. Olivia was born to my 15-year-old teen daughter in...

Do The Best You Can With What You Have! by Ariel Moreno

Hello everyone! My name is Ariel and I would love to share my story with you, I was born in August of 2001. My mother had no idea I was...

Getting The Most Out Of This Short Life - by Andrea Pflughoeft

February has a lot of meaning to me and always has. Not only do my boyfriend and I both celebrate our birthdays this month, but it’s also...

I'm a Registered Nurse, and I Didn't Even Catch It! - by Danielle Smith, TSSUS Board Member

As a registered nurse, patient advocate, and mother of a daughter (Isabella, 24) diagnosed with TS as an infant, I know firsthand how...

Diagnosed with TS a Year After My Wedding by Sol Ramirez-Rios

Hi, my name is Sol, and I am 37 years old. I was diagnosed with Turner syndrome (TS) at the age of 24. I met my now-husband at the age of...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

A New Diagnosis Can Be Isolating - by Elizabeth Dabrowski, MD, TSSUS Board Member

Understanding Social Challenges in Turner Syndrome: Navigating Friendships and Connection

Life is Better with Butterfly Friends! - by Stephanie Guy

Turner Syndrome is a Learning Curve - by Jessica Carlough

TSSUS is Like Family, and the Conference is Like Home - by Erica Melman

This Girl Amazes Me! by Olivia Brambila's Grandmother

Do The Best You Can With What You Have! by Ariel Moreno

Getting The Most Out Of This Short Life - by Andrea Pflughoeft

I'm a Registered Nurse, and I Didn't Even Catch It! - by Danielle Smith, TSSUS Board Member

Diagnosed with TS a Year After My Wedding by Sol Ramirez-Rios

Recent Posts

This Is Our Daughter's Story - by Leslie Leber

I'm Confidently Facing My Future Now - by Naveh Riles

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

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