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Chasing Butterflies Walk
The Official Fundraiser for TSSUS 

Chasing Butterflies walks are a national signature fundraising event for TSSUS, and they support our mission to advance knowledge, facilitate research, and provide support for all touched by Turner syndrome. Walks bring those with TS, and their families and friends together in a fun and supportive way to raise much needed funds and awareness for TS

How does this work?

Would you like to find out more about how to successfully host a TSSUS Chasing Butterflies Awareness and Fundraising Walk in your local area? We are always looking for people who would like to work with us to coordinate a local event in your community.

Pick a place to have the walk. For example, a park, church, YMCA or a fun place to have a walk. You can reach out to Deborah Rios at to help you with your ideas and answer any questions you may have about hosting a walk in your local community. 


This year, we are offering some great prizes based on each individual's fundraising results, and we have some pretty amazing merch, starting with a free official walk t-shirt for those who raise $100+.


How can you get involved?


Register as an individual or you can join a walk team.

  1. Participate in the walk.

  2. Donate as well if you like.

  3. Have fun!


Create a Team

  1. Create your own personal fundraising page

  2.  Share your TS story or let people know why creating awareness and raising money for the TS community is important to you.

  3. Share your page.  

  4. Invite your friends and family to join you in creating awareness and raising funds.

  5. Have fun!

Join a Team

  1. Support someone who has already created a team by registering to walk with them.

  2. Invite your friends and family to join the team or donate.

  3. Have fun!

Or, make a donation towards a team

You can do it! It's easy...

  1. Read the Chasing Butterflies Walk Handbook.

  2. Contact us and let us know you are interested.

  3. Let's start planning!


"I made a new friend at the walk this year."

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