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Chasing Butterflies Walk
The Official Fundraiser for TSSUS

Chasing Butterflies Walks are a national signature fundraising event for TSSUS, and they support our mission to advance knowledge, facilitate research, and provide support for everyone touched by Turner syndrome (TS). Our Walks bring those with TS, and their families and friends together in a fun and supportive way to raise much-needed funds and awareness for TS.
Join the Chase

How does this work?

   Would you like to find out more about a TSSUS Chasing Butterflies Awareness and Fundraising Walk in your local area? Visit our Event Calendar for information about scheduled walks. And, we are always looking for people who would like to work with us to coordinate a local event in your community.

   This year, we are offering some great prizes based on each individual's fundraising results, and we have some pretty amazing merch, starting with a free official walk t-shirt for those who raise $100+.


Lots of ways to get involved


Register as an individual

  • Participate in the walk.

  • Invite your friends and family to join you or donate.

  • Donate as well if you like.

  • Have fun!


Join a walk team

  • Support a friend or family member on their team.

  • Sign up to be on their team.

  • Invite your friends and family to join you or donate.

  • Participate in the walk.

  • Donate as well if you like.

  • Have even more fun!


Create a Team

  • Create your own personal fundraising page on social media

  • Share your TS story or let people know why creating awareness and raising money for the TS community is important to you.

  • Share your page.  

  • Invite your friends and family to join you in creating awareness and raising funds.

  • Remind your walkers and supporters a few days before the Walk

  • Have fun!

Sponsor a Walk

  • Read the Chasing Butterflies Walk Handbook.

  • Contact us and let us know you are interested. 800- 365-9944 – or email: 

  • Pick a place to have the walk. For example, a park, church, YMCA or a fun place to have a walk.

  • Reach out to Deborah Rios at  to help you with ideas and answer any questions you may have about hosting a walk in your local community. 

  • Create awareness on social media to encourage your friends to participate.

  • Let Deborah know you want to add your event to the TSSUS calendar and social media.

  • Enlist some volunteers to help make the walk run smoothly.


We have lots of help to provide.


Let's start planning!


And, of course, we always appreciate your donations to a walker or to a team.

There are no Chasing Butterflies Walks currently scheduled.
For information on organizing a Chasing Butterflies Walk, contact Deborah Rios.

"I made a new friend at the walk this year."

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