My Inspiration is You - by Deborah Rios

My TS journey began nearly 16 years ago. I started as a part-time employee at the Turner Syndrome Society of the United States (TSSUS). Cindy and I shared classroom activities and parties with our children and our girls became close friends in no time. Cindy’s daughter, Brooke, was the only person I had ever met with Turner syndrome (TS). Our girls spent every minute they could with one another. They all loved playing school and they all wanted to be the teacher.

I have always had a passion for helping others ever since I can remember. My mom always said that I had a true gift, and it was so natural for me to lend a hand when I could and make a friend to anyone I met. It warms my heart to be able to “fix” something for someone, or just be there to listen. I love hearing the stories, the struggles, and the triumphs that are shared with me.

In 2008, I attended my first TSSUS National Turner Syndrome Conference and was able to meet so many people with TS, their families, and their friends. I was overwhelmed at first, but soon knew that I belonged to this amazing community. Everyone was so very welcoming and by the end of the conference, it felt like I had attended a family reunion. I have had the pleasure to meet or speak with so many of you in the TS community. We have shared fears, tears, and so much laughter!

I have learned so much over the years and I continue to be inspired by so many of you. Whether it be your struggles, your challenges, your strengths or motivations. What an amazing community to be a part of! I am blessed to have made lifelong friendships during my journey and look forward to making many more.

Deborah Rios

National Director of Member Services

The Turner Syndrome Society of the United States