Turner syndrome (TS), and the loss of fertility that comes along with it, really was a roller coaster ride. It certainly was for me and my boyfriend, now my husband.  And don’t forget our parents.  It all started when I was about 11 years old.  I had finally ended the adventure of getting diagnosed with TS along with, most importantly, my parents. But that is another story. I had just been buckled up in the station wagon preparing for the 35-minute trip back to the house from the...

Hearing that your baby may  have Turner syndrome during pregnancy can feel overwhelming. You might be experiencing sadness, fear, confusion, or even guilt—all of which are completely natural. Please know this: you did nothing to cause this, you are not alone, and there is real reason for hope. Turner syndrome (TS) is a well-understood condition. With today’s medical care and strong support systems, many girls with TS grow up to live full, healthy, meaningful lives. Let’s gently walk through...

Ok, get ready because I’m basically going to share my entire life story. As I’m sure many of you know, girls with Turner syndrome (TS) can be extremely different; no two are exactly alike. Thus, I can only attest to my personal experience as just one of the many people with said diagnosis. When thinking of all the characteristics and potential medical issues that can come with TS, I like to think that my case is like “having a little bit of everything”. By this, I mean that I pretty much have...