Hello! My name is Shelby Collins, and I am the mommy of Juliauna who is currently 4 years old. Juliauna is a TS butterfly! She was born at 36 weeks and was 4lbs 4oz. While she was in utero, she measured small and had some heart concerns. We were followed by my OB/GYN and a high-risk OB/GYN. When she was born, she was transferred right away to the NICU. She could not breathe, suck, or swallow on her own. She was in the NICU for 14 days. While she was there, they did several tests on her. She...

Before I was even born, my life was questioned. My parents were told by an OB-GYN that I wasn’t going to make it, that my body wasn’t developing “normally,” that my chances of survival were low, and that termination was the safest option. Before I had a name, before I took my first breath, my life was already seen as a problem to erase. But God had already decided I was meant to be here. Even when doctors doubted my survival, God never did. Living with Turner syndrome (TS) has meant a...

I was diagnosed with mosaic Turner syndrome at almost 26 years old (I am about to turn 30). Since then, it has been a very up and down journey emotionally. All the doctor’s visits and information were initially overwhelming, but I am grateful I have minimal symptoms. The main issues I have to monitor are my bone health and blood sugar, along with making sure my heart continues to stay in good shape. My husband, family, and friends have been very supportive, which I am so thankful for. The...