2025 TSSUS Annual Fundraising Campaign
We're taking Turner Syndrome
Support to the Next Level
Because no one should face Turner syndrome alone.
As leaders of the TS community, we will continue to thoughtfully incorporate the learning, social, and emotional needs of the TS community into our services. Our next level plans include creating more user-friendly resources by incorporating lists, short videos, expert interviews, step-by-step instructions, charts and stories to support the needs of everyone including those who learn differently.
In 2026, we will launch the Turner Topic Monthly Series, which will deliver consistent, multi-format educational and support content around key Turner syndrome themes. The series highlights what’s most important to know, how-tos, and next steps. To name just a few, we will focus on things like social and emotional struggles, challenges in the workplace, and how to manage medical concerns.
Every month, we take almost 400 people to the Next Level by providing:
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One-on-one support – nearly 100 people a week find answers and hope from TSSUS through phone calls, email, and social media.
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Generational Zoom Calls – from 20-somethings to Golden Butterflies, our online social calls connect people of all ages every month.
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Local Support Groups – in-person gatherings that bring joy, friendship, and encouragement.
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National Conference – where over 500 people come together each year to learn from TS experts, laugh, and share life-changing moments.
Your gift matters because at TSSUS, we are solving everyday life challenges related to Turner syndrome.
When you give, you provide:
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Hope to a child who feels “different.”
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Strength to a parent searching for answers.
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Connection for a woman navigating life’s challenges with TS.
The Power of Community
There is something powerful that happens when people with Turner syndrome (TS) come together. A single friend who “gets it” can change everything. A local support group or online Zoom call can transform isolation into belonging. A national conference can spark lifelong connections. At TSSUS, we’ve seen it again and again – hope is found when people are seen, understood, and celebrated. That is what community at the Next Level looks like.
Taking Support to the Next Level
As leaders of the TS community, we will continue to thoughtfully incorporate the learning, social, and emotional needs of the TS community into our services. Our next level plans include creating more user-friendly resources by incorporating lists, short videos, expert interviews, step-by-step instructions, charts and stories to support the needs of everyone including those who learn differently In 2026, we will launch the Turner Topic Monthly Series, which will deliver consistent, multi-format educational and support content around key Turner syndrome themes. The series highlights what’s most important to know, how-tos, and next steps. To name just a few, we will focus on things like social and emotional struggles, challenges in the workplace, and how to manage medical concerns.
Every month, we take almost 400 people to the Next Level by providing:
-
One-on-one support – nearly 100 people a week find answers and hope from TSSUS through phone calls, email, and social media.
-
Generational Zoom Calls – from 20-somethings to Golden Butterflies, our online social calls connect people of all ages every month.
-
Local Support Groups – in-person gatherings that bring joy, friendship, and encouragement.
-
National Conference – where over 500 people come together each year to learn from TS experts, laugh, and share life-changing moments.
Next Level Research and Awareness
We’re excited to announce we’ve taken TS research to the Next Level by tripling our financial commitment to support TS studies. The TSSUS Turner Syndrome Research Registry is building the strongest foundation yet for advancing care, thanks to a groundbreaking partnership with the University of Texas Health Science Center.
At our most recent conference, 139 free echocardiograms were provided through the Healthy Heart Study – research that is already changing standards of care for TS.
Every breakthrough, every connection, every ounce of hope – it’s all made possible by you.
