Back-to-School Tips for Children with Turner Syndrome - by Becky Brown

Back-to-school season can be exciting but also challenging—especially for children with Turner syndrome (TS). While every child is unique, girls with TS may experience learning differences, social challenges, medical needs, and growth-related concerns that can make the return to school more complex.

With the right preparation and support, children with Turner syndrome can thrive academically, socially, and emotionally. Here are practical tips for parents, teachers, and caregivers to help create a successful and smooth back-to-school transition.

1. Schedule a Medical Check-Up Before School Starts

Children with TS require ongoing medical care and may have appointments with specialists such as endocrinologists, cardiologists, or audiologists.

Before the school year starts:

• Ensure all medical appointments are up to date.

• Request any necessary school accommodations or documentation from healthcare providers.

• Talk to your child’s doctor about physical activity limitations, hearing aids, or medication needs (e.g., growth hormone injections).

2. Create or Update an IEP or 504 Plan

Girls with Turner syndrome may have specific learning differences, particularly in:

• Math

• Visual-spatial processing

• Executive functioning

• Attention and memory

Meet with your child’s school to discuss an Individualized Education Program (IEP) or a 504 Plan if they don’t already have one. These plans can help provide accommodations such as:

• Extra time on tests

• A quiet testing environment

• Math support

• Occupational therapy for fine motor skills

• Seating at the front of the classroom (important if hearing is affected)

Resource: Video "Making Sense of 504's and IEP's"

3. Prepare for Social Challenges

Some children with Turner syndrome may struggle with social skills or making friends. Role-playing scenarios, joining school clubs, or working with a school counselor or social skills group can help build confidence. You might also:

• Schedule playdates with familiar classmates before school starts.

• Talk about how to recognize and handle peer pressure, teasing, or exclusion.

• Encourage participation in inclusive extracurricular activities where your child feels comfortable.

4. Discuss Growth and Puberty Positively

Children with Turner syndrome are typically shorter than their peers and may experience delayed or absent puberty. These differences can be emotionally difficult, especially during adolescence.

Tips:

• Prepare your child with age-appropriate, positive conversations about their body and development.

• Work with the school to ensure your child is not teased or singled out during health classes.

  
  

5. Organize a Team Meeting at the Start of the Year

Arrange a meeting with teachers, school nurses, counselors, and learning specialists early in the school year. Provide a brief, easy-to-understand explanation of Turner syndrome, and highlight your child’s strengths and needs. This helps the team:

• Know what to expect

• Communicate effectively

• Respond with understanding if challenges arise

You may also want to create a one-page “Student Snapshot” with helpful info like:

• Preferred learning styles

• Social tips

• Medical alerts

• Key contacts

Resources:

Create a Personalized Back to School Letter for your student HERE.

6. Foster Independence and Self-Advocacy

Encourage your child to speak up about their needs as they grow older. This could mean:

• Asking for help with an assignment

• Requesting a break if they feel overwhelmed

• Explaining their condition to trusted friends or teachers

Self-advocacy is empowering and prepares children for greater independence in middle school, high school, and beyond.

7. Stay Connected and Flexible

Every school year brings surprises—some joyful, some stressful. Keep an open line of communication with your child and their teachers. Regular check-ins can help you catch small problems before they become bigger ones.

Joining TSSUS support groups—online or locally—can also be a source of encouragement and advice.

Resource: TSSUS Events Calendar

Final Thoughts

While Turner syndrome may bring extra considerations to the back-to-school experience, it doesn’t have to hold your child back. With thoughtful planning, strong communication, and a supportive environment, your child can thrive both academically and personally. Celebrate her strengths, nurture her confidence, and remember—she’s capable of great things.