February - 2022 5/6

I Define What Turner Syndrome Is by Caitlin Sullivan

Hi all! My name is Caitlin Sullivan, and I am a 25-year-old woman with Turner syndrome (TS) from Massachusetts. I can honestly say I love...

I Decided I Would No Longer Hide my Turner Syndrome - by Deimante Sefleryte

Hi, my name is Deimante, and I am from a small town in Lithuania in Eastern Europe. I got the diagnosis of Turner syndrome (TS) as a...

Copy of Foster to Adopt - One Butterfly's Path to Motherhood - by Elizabeth Fontenot

Ever since I was a little girl, I dreamed about being a mother. My mother often tells a story about when I was growing up. I would gather...

This Is Me! by Suzanne Ditacconi

This is me! I was diagnosed with Turner syndrome (TS) at birth in 1980. For the first twelve years of my life, I faced many medical...

God Is Not Done with Me Yet! by Cher Nakachi

My name is Cher Nakachi, and I was diagnosed with Turner syndrome (TS) on the last day of 6th grade. It was actually the school nurse,...

Never Give Up! by Natalie Brady

Hey, I’m Natalie and I am 34 years old. I was diagnosed at the age of 5 when my mom noticed I was shorter than my other siblings. I am...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

I Define What Turner Syndrome Is by Caitlin Sullivan

I Decided I Would No Longer Hide my Turner Syndrome - by Deimante Sefleryte

Copy of Foster to Adopt - One Butterfly's Path to Motherhood - by Elizabeth Fontenot

This Is Me! by Suzanne Ditacconi

God Is Not Done with Me Yet! by Cher Nakachi

Never Give Up! by Natalie Brady

Recent Posts

My Daughter Was the Key to My Diagnosis by Amanda Bosman

Meet TSSUS's New Conference Coordinator, Morgan Crumrine

My Hope is to Inspire You - by Jennifer Morris

Evolving Needs, Evolving Care, Evolving Diagnosis – by Bethany Weddle

Hypothyroidism and Hashimoto's Disease in People with Turner Syndrome: A Comprehensive Overview

Turner Syndrome Hasn't Stopped me, EVER! by Emily Ryan

Vocational Rehab Services Can Help Find or Support Your Career Path - by Becky Brown

Navigating the Workplace with Nonverbal Learning Disorder (NVLD) - by Becky Brown

My TS Story - Conference Edition, by Brittany Hinsey

Back-to-School Tips for Children with Turner Syndrome - by Becky Brown

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