It's Simple to Register!
Now YOU can contribute to scientific discoveries related to Turner syndrome from the comfort of your own computer!
The Turner Syndrome Research Registry is a database, collection of records, dedicated to Turner syndrome research. It is a secure and efficient way for researchers to connect with you or your data in hopes of gaining new insights or developing future treatments.
We believe that the information you provide to one researcher should be available to many approved TS researchers and available for use for years to come.
The registry system is called PEER (Platform for Engaging Everyone Responsibly) and collects participant responses to questions related to TS. It is the only TS registry that allows the participant, you, to select how the information you enter is managed.
The Turner Syndrome Research Registry is supported and managed by:
Questions about the registry?
Call us at 800-365-9944, and we'll be happy to help!