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Individuals & Families

Turner Syndrome

One of the primary goals of TSSUS is to provide comprehensive, quality resources that educate and support the TS community. Many people visit our website after receiving a new prenatal, early childhood, teen, or even adult Turner syndrome diagnosis. Whether you are a new visitor or a long-time member, we hope you will find the information you need to make informed decisions about your own or your child's health and care.

The most popular resources are listed below and others are within related topic pages throughout the website. Please contact us if you are unable to find what you are looking for at 800-365-9944, or email

TS Clinical Guidelines Summary

TS Adult Health Monitoring Chart

Turner Topics

TS: A Guide for Teens

Coley's Story

Clinical Practice Guidelines

TS Brochure

TS Cardiac Alert Card

TS Growth Chart

TS Screening Tool

TS: A Guide for Families

TS Healthcare Checklist

TS Terminology

Turner - Know Your Body

Turner syndrome action
  • Participate in TS Research: Join over 1000 others who joined the Turner Syndrome Research Registry- link to registry

  • If the information on our site is helpful, please donate in appreciation. 

  • Not finding what you are looking for, let us know. Link to contact us.

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