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Current News

2020 TSSUS National Turner Syndrome Conference in Phoenix Cancelled

Due to escalating worldwide concerns surrounding the COVID-19 virus and after much consideration, the Turner Syndrome Society of the United States has made the difficult decision to cancel the 33rd Annual TSSUS National Turner Syndrome Conference scheduled for July 24 – 26, 2020, in Phoenix, Arizona.

Participate in TS Research Online

In as little as 15 minutes you can help TS researchers learn more about TS.  You are the most important part of TS research. Please join the Turner Syndrome Research Registry (TSRR). 

The State of Turner Syndrome Science -Are we on the Threshold of Discovery?

If you are interested in Turner syndrome research, you're in luck!  There are 13 research review manuscripts and 4 new research articles available.  You may access the American Journal of Medical Genetics (AJMG) Special Issue on the Proceedings of the Turner Syndrome Research Network Symposium free of charge from guest editors Paul Kruska, MD and Michael SIlberbach, MD.  

The Turner Syndrome Society of the United States is proud that our co-leadership role in the Turner Resource Network and the TS Professisional Symposium results in advancing knowledge and informing research for the TS community.

The Patient-Friendly TS Care Guidelines- Order your copy Today!

The patient and family friendly version of the Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome is a summary of the full version of the Guidelines.  This version is printed in booklet format, and is available for order for $5 per copy to cover the cost of printing and postage, or you can download the pdf in both English or Spanish.

The Butterfly Society of TSSUS!

The Butterfly Society of TSSUS is an exclusive monthly giving program for supporters of Turner syndrome research, education, awareness, and support programs.

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The Turner Syndrome Society's mission is to

advance knowledge, facilitate research, and support all those touched by Turner syndrome.

Disclaimer- The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images and information, contained on or available through this web site is for general information purposes only.

Turner Syndrome Society of the United States  ~  11250 West Rd  Suite G  Houston TX 77065  ~ 1- 800-365-9944  ~    Info@turnersyndrome.org 

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