Make plans to join us the July 24-26 in Phoenix, Arizona for a TSSUS Fiesta! Details will be added over the next few weeks, but registration is OPEN! 

This year our theme is "Be Uniquely You." Download your awareness materials here. 

In as little as 15 minutes you can help TS researchers learn more about TS.  You are the most important part of TS research. Please join the Turner Syndrome Research Registry (TSRR). 

If you are interested in Turner syndrome research, you're in luck!  There are 13 research review manuscripts and 4 new research articles available.  You may access the American Journal of Medical Genetics (AJMG) Special Issue on the Proceedings of the Turner Syndrome Research Network Symposium free of charge from guest editors Paul Kruska, MD and Michael SIlberbach, MD.  

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The Turner Syndrome Society of the United States is proud that our co-leadership role in the Turner Resource Network and the TS Professisional Symposium results in advancing knowledge and informing research for the TS community.

The patient and family friendly version of the Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome is a summary of the full version of the Guidelines.  This version is printed in booklet format, and is available for order for $5 per copy to cover the cost of printing and postage, or you can download the pdf in both English or Spanish.

The Butterfly Society of TSSUS is an exclusive monthly giving program for supporters of Turner syndrome research, education, awareness, and support programs.