I would like to extend a warm welcome to anyone touched by Turner syndrome. We are here to answer your questions and provide a greater understanding of this condition and its impact on girls and their families. This community exists for you. If you don’t find what you need here, please reach out to me. I’ll help you find the resources you need (cindy@turnersyndrome.org).

The Good Doctor episode featuring a baby with TS can be watched here. 

This storyline will continue on the show.

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Nationwide Shortage of Growth Hormone Norditropin

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We have contacted Novo Nordisk who asked us to share information about a nationwide shortage of the growth hormone drug Norditropin®. Due to manufacturing delays, the company is unable to provide a consistent supply of Norditropin product to the U.S. market, beyond the limited quantity already available as of January and February 2023. Supply was anticipated to restart in mid-March and continue through April, May, and June.

 

They expect to meet demand by the end of June and foresee a stable supply of Norditropin® throughout the second half of this year. This supply update has been communicated to the FDA.

 

They acknowledge that continuity of treatment is of utmost importance for patient care and recognize that any type of interruption in daily GH treatment can result in suboptimal outcomes in TS patients. The advice is to check your supply of Norditropin®, and update your physician of current stock levels. If you have a sufficient supply, no action is needed. Your health care provider is working on patient-specific solutions for those with little or no supply of GH. Please contact your health care provider only if your supply is low so that they may work on a patient-specific solution for you. We have also become aware of supply shortages for other brands of growth hormone.

 

Please rest assured that Novo Nordisk is doing everything they can to improve the situation and will keep us updated. If you have concerns, you can contact the Turner Syndrome Society of the United States at 800.365.9944 or info@turnersyndrome.org.

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