The American physician and researcher, Dean Ornish, said “The need for connection and community is primal, as fundamental as the need for air, water, and food.” At the Turner Syndrome Society of the United States (TSSUS), we believe in the healing power of community; we believe that we all stand just a little bit stronger when we stand together, and that when we rely one upon the other, we build a foundation of support and forge friendships that can last a lifetime. 

2019 Annual Fundraising Campaign

When you donate to the TSSUS Annual Campaign, you’re making a difference. You’re changing lives. You’re building a place where no one feels like an outsider, and where everyone matters and feels loved. You’re building a future for all those touched by Turner syndrome.You’re making a difference and investing in OUR community today, tomorrow, and for years to come. 

Now more than ever, we need your help. Please donate and become a member of TSSUS today.

Current News

Participate in TS Research Online

In as little as 15 minutes you can help TS researchers learn more about TS.  You are the most important part of TS research. Please join the Turner Syndrome Research Registry (TSRR). 

The State of Turner Syndrome Science -Are we on the Threshold of Discovery?

If you are interested in Turner syndrome research, you're in luck!  There are 13 research review manuscripts and 4 new research articles available.  You may access the American Journal of Medical Genetics (AJMG) Special Issue on the Proceedings of the Turner Syndrome Research Network Symposium free of charge from guest editors Paul Kruska, MD and Michael SIlberbach, MD.  

The Turner Syndrome Society of the United States is proud that our co-leadership role in the Turner Resource Network and the TS Professisional Symposium results in advancing knowledge and informing research for the TS community.

The Patient-Friendly TS Care Guidelines- Order your copy Today!

The patient and family friendly version of the Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome is a summary of the full version of the Guidelines.  This version is printed in booklet format, and is available for order for $5 per copy to cover the cost of printing and postage, or you can download the pdf in both English or Spanish.

The Butterfly Society of TSSUS!

The Butterfly Society of TSSUS is an exclusive monthly giving program for supporters of Turner syndrome research, education, awareness, and support programs.

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Disclaimer- The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images and information, contained on or available through this web site is for general information purposes only.

Turner Syndrome Society of the United States  ~  11250 West Rd  Suite G  Houston TX 77065  ~ 1- 800-365-9944  ~ 

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