When you donate to the Turner Syndrome Society’s Annual Campaign, YOU ARE:
Building a Community of individuals.
TSSUS offers events in communities across the country to encourage sharing and learning from
personal experiences, as well as the TSSUS National Turner Syndrome Conference, and "TS Days" events. Sometimes, it just takes meeting one other person with TS to realize you are not alone, and that you will be okay.
Building a Community of knowledge.
TSSUS creates and distributes expert resources on the latest medical, health, and well-being information available. From providing free printed copies of the new Cardiac Emergency Alert Card (CAEC) and the patient and family version of the Clinical Practice Guidelines
for the Care of Girls and Women with Turner Syndrome to all who order it, to providing professionally recorded National TS Conference sessions, we put vital resources in the hands of the TS community. The TSSUS website is the most comprehensive site for Turner syndrome resources on the web. We believe knowledge is the key to managing TS care throughout the lifespan, and we invest in resources that empower those affected so that they may more effectively partner with their doctors.
Building a Community of professionals, medical experts, and people with TS.
We’re here for you and the medical community. Through our leadership of the Turner Resource Network (TRN), and the bi-annual Turner Syndrome Professional
Symposium, we bring together leading health providers, researchers, and patient advocates to collaborate toward advancing knowledge of TS health care.
Building a Community for the future.
In 2018, TSSUS donated almost $60,000 to support cardiac research through the Ravelle
Pitmann Research Fund of TSSUS, established by Elena Erenburg. Life-threatening cardiac issues are a major concern for those living with Turner syndrome. The TSSUS funded and managed Turner Syndrome Research Registry (TSRR) continues to grow and become more sophisticated as it enters its 3rd year. This Registry is the future of TS research.
Building a Community through
phone support and social media.
TSSUS knows our community. We know your challenges, your successes, and your sorrows. We celebrate with you, we cry with you, and we are there with you every step of the way. Through daily phone and social media support, TSSUS is impacting the lives of people and families with Turner syndrome.
Annual Fundraising Campaign
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