Instructions for filling out the Registration Form on behalf of a minor or another:

  • Please note, you must be a legal guardian or authorized to act on behalf of the person with TS.

  • Please discuss the purpose of their participation in the registry as appropriate for their understanding.

  • Upon reaching the age of 18, you will be asked to assist with the process of transferring participation options to the individual with TS, as appropriate.

 Turner Syndrome Research Registry Registration Form

Enter information below for the person with TS 

Please contact us at or 800-365-9944 if you need any assistance with filling out the form or understanding the consent form- we appreciate you!