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Happy Fall!

We hope you’ve enjoyed meeting people through our Zoom Generational calls and learned from the 2024 conference recordings we have available. Our annual fundraising campaign is underway, and we thank you in advance for supporting those with Turner syndrome and their families through TSSUS. The best way to keep up with TSSUS happenings is to receive our monthly e-newsletter and FB page. Our private FB groups are a great way to get support and learn from others in the TS community.

We are the largest organization – worldwide – supporting the Turner syndrome community, but we haven’t lost our personal touch. Reach out to Cindy, Becky or Deborah for expert advice on your TS questions and concerns. We are here to help.

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President & CEO, M.A., L.P.C.

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Turner syndrome News from TSSUS
¡Nuevas Guías de Práctica Clínica en Español!
¡Nos complace compartir las Pautas de atención clínica recientemente revisadas para el síndrome de Turner! Esta versión está diseñada para pacientes, familias y cuidadores. También puede acceder a la versión completa para proveedores de atención médica. Explora ambas versiones aquí.
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California Expands Prenatal Screening Program
The service is offered to all pregnant women in California to detect potential genetic conditions and birth defects in their developing fetus. California is the only state providing voluntary, standard-of-care prenatal screening to all individuals.
Read more.
TSSUS is committed to providing information to those who receive prenatal test results indicating Turner syndrome. Unfortunately, information is limited because there is little research related to outcomes and testing accuracy. We are launching a new TS survey in May to obtain information about TS during pregnancy-early life. The survey announcement will be shared in the newsletter.
New Clinical Practice Guidelines!
We're excited to share the newly-revised Clinical Care Guidelines for Turner Syndrome! This version is designed for patients, families, and caregivers. You can also access the full version for healthcare providers. Explore both versions here. 
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Data from TSSUS and UT Health surveys inspires & facilitates patient-powered TS research. 

Read March 2024 Updates.

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Adriana Garcia love the TSSUS Conference

"An unforgettable experience that truly helped me to have a feeling of a sense of belonging would be when I was able to attend my first Annual TSSUS conference last year!"  Adriana Garcia

Thank you, Adriana, for your thoughtful response in our discussion about the potential for those living with Turner syndrome.

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  • Use the Search Bar: The search function at the top of the page makes it easy to find specific topics.

  • Contact Us for Questions: If you have any specific questions, feel free to contact us—we're here to help!

  • Connect with the Community: Gain insights from others by contacting us to connect with a peer via phone, email, or by joining the TSSUS private Facebook group.

  • Browse Resources: Explore our wide range of educational materials, articles, and support resources tailored for Turner Syndrome.

  • Stay Informed: Check for updates on new events, webinars, and research related to Turner Syndrome.

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