Resources for Doctors and Professionals 

If you have difficulty finding information on the care and management of Turner syndrome, please contact our office.  We work closely with TS specialists that are happy to share their knowledge with you or learn alongside you. 

We offer patient and family resource publications to members at no cost, downloads are free of charge and hard copies are available for purchase. Bulk rates are available and TSSUS professional members receive an additional discount. 

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Turner Syndrome Clinical Practice Guidelines

The international guidelines released in 2017 offer graded evidence recommendations.

Turner Syndrome Healthcare Checklist

Adult Health Surveillance Chart for Turner Syndrome

TS Growth Chart

Turner Know Your Body

The e-book editor is Claus Graveholt MD, and each chapter covers specific conditions related to TS.

Laboratory Guidelines for Turner Syndrome

Cardiovascular Health in Turner Syndrome

A Scientific Statement from the American Heart Association

Cardiovascular Health in Turner Syndrome Bibliography

(Contains EndNote tags*)

TS Screening Tool for School Nurses

Turner Syndrome Health and Wellness in the 21st Century

The e-book summarizes 30+ clinicians and researchers gathered at the Turner Resource Network Symposium. Edited by Michael Silberbach, MD and Charmian Quigley, MD.

Patient and Family Resources

Resources such as the TS Guide for Families and the TS Patient version of the Clinical Practice Guidelines and more are available for free as a download or may be purchased from TSSUS.