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Turner Syndrome Society
of the United States (TSSUS)

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Video de la reunión anual 2020

Acerca de Sociedad del síndrome de Turner de los EE. UU.

La TSSUS está reconocida como una organización nacional sin fines de lucro 501 (c) (3) EIN # 41-1596910 que brinda recursos relacionados con la salud a pacientes, familias y médicos para el diagnóstico y tratamiento del síndrome de Turner. Hay capítulos y grupos de recursos ubicados en todo el país. El TSSUS es operado por 4 miembros del personal en nuestra Oficina Nacional en Houston, TX, y es supervisado por 11 miembros de la junta a nivel nacional.

 

Estado de la misión

La Sociedad del Síndrome de Turner promueve el conocimiento, facilita la investigación y brinda apoyo a todas las personas afectadas por el síndrome de Turner. Los miembros del personal responden preguntas por teléfono y correo electrónico, trabajan con grupos locales, crean recursos, planifican eventos y mantienen nuestro sitio web actualizado y relevante para las necesidades de nuestra comunidad única.

History of the Butterfly as a Symbol for Turner Syndrome

 

Today, the butterfly is recognized around the world as the symbol for Turner syndrome. We even refer to ourselves as butterflies, butterfly sisters, and golden butterflies. Many people ask how this came to be.

In 2010, the Turner Syndrome Society of the United States decided to update the organization’s logo. The previous logo featured four connected circles representing the connections between those with TS the Society supported. One of the things we often heard from the community was that the logo looked like a butterfly.

The four circles of the former logo have evolved into the wings of the iconic butterfly of the Turner Syndrome Society of the United States logo known around the world you see today. This evolution connects our past to our present. The butterfly is feminine yet strong like our members. Butterflies fly on their own, which is what we hope all of those with Turner syndrome will do with TSSUS forever providing support.

The Turner Syndrome Society of the United States is proud to have created the connection between the butterfly and Turner syndrome so well known today.

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Financials

All nonprofit charities are required to make their financials available to the public, either online or by request. We value being transparent with our community and welcome any questions.

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