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Every age.
Every stage.
For life
Current Updates
The Patient and Family Version of the Clinical Practice Guidelines for Turner Syndrome
This version was written for you and the version for healthcare providers is available as well. You can access both versions here.
The TSSUS Cardiac Alert Card
This handy plastic card can be kept in with you in case of an emergency. It helps medical staff understand specific risks associated with TS and the heart. You can find it in the TSSUS online store.
The TSSUS National Turner Syndrome Conference Presentations and Handouts
TFor those of you who joined us in Raleigh and for those of you who missed attending this year, the resources are available to all. Find out what you missed by clicking here
"My health, my needs, and my understanding of who I am will keep evolving - and that’s okay. For those of us with Turner syndrome, this evolution is part of the story. It’s not a sign of weakness but rather of resilience - proof that we are continually learning how to care for ourselves in deeper, wiser ways."
- Bethany Weddle
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Get the latest news, resources, research, and event updates.
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