Meet Our Staff and Board of Directors
Cindy Scurlock President & CEO
Cindy strengthens the Turner syndrome (TS) community to confidently partner with health providers, researchers, and each other. Her daughter, Brooke Kaczynski, was diagnosed with TS at birth and after years of struggling to find information for her daughter's care, she began volunteering for TSSUS. During a difficult period for TSSUS, Cindy became the President/CEO and her leadership maintained TSSUS as the largest TS organization worldwide. Her 15 years as a staff member and mom contribute to the values and culture of TSSUS which is to respect and treat those in the TS community as family.
She manages the patient-powered Turner Syndrome Research Registry, is a member of the Scientific Advisory Board, co-author of 4 medical journal articles about TS, serves as a steering committee member for the Turner Resource Network, and is an ambassador for ICOSEP (International Coalition of Organizations Supporting Endocrine Patients). Cindy graduated from Stephen F. Austin State University in Texas with a BS degree in Psychology and Biology and an MS degree in Community Counseling.
Deborah Rios National Director of Member Services
Becky Brown National Director of Development and Communications
Bobby Marsh Consultant Bookkeeper and Information Technology
Meet our Board of Directors
The TSSUS Board of Directors consists of 10 volunteer members from across the United States. The Board meets via teleconference once per month and holds three in-person meetings annually. All paid TSSUS members in good standing are eligible to apply to serve and vote on the national TSSUS Board of Directors.
Brittani has been a board member of TSSUS since 2018, and a woman with Turner syndrome. She increased her involvement with TSSUS after her first conference in 2011. She lives in Orange County, California where she grew up. She married her sweetheart, Jon, in 2021. They have a puppy, Romey, who is full of energy. Brittani is a Family Nurse Practitioner and has been practicing since 2019. She loves spreading awareness about Turner syndrome and encouraging those with TS. She hopes to utilize her experience with having TS and her medical knowledge to help others.
Board Chair Elect
Carolyn is a Finance Professional and lives in Michigan with her husband Mike. Carolyn’s daughter Caitlin, 24, was diagnosed with TS at the age of 7 and both Carolyn and Caitlin have been involved with TSSUS since that time. They are grateful to TSSUS for learning how to advocate on Caitlin’s behalf over life’s different stages. Caitlin currently teaches third grade in Boston. Carolyn hopes to continue to expand the impact of TSSUS in its mission to support and empower the TS community through education and engagement.
Daniel is a professor of finance at Niagara University in Lewiston, NY. Dan and his wife Ann have been married for 32 years; Ann has TS. A native of Ohio, Dan has a BA in Economics from Ohio State University, an MBA from the University of Akron, and a Ph.D. in Finance from the University of Kentucky. Prior, Dan worked at the University of Michigan – Dearborn, and the University of Findlay. Professionally Dan has taught courses in economics, finance, and strategy for undergraduate, masters, and Niagara University’s Ph.D. in Leadership programs. Dan has over 30 published articles or proceedings in professional journals. In addition, Dan has served in many community service roles.
Melissa has been married to John for 28 years. She has a son, Zach, 25 and a daughter, Carissa, 27. Carissa was diagnosed with Turner syndrome at birth. She had many challenges growing up. Twelve years ago, she had open heart surgery to replace a valve and fix her pulmonary artery. Carissa graduated from law school in January 2020. July 2021, Carissa passed the bar exam and is working as a lawyer in Green Bay. Melissa has been a member of TSSUS for over 23 years and is grateful to TSSUS for helping her advocate for her daughter at school and with doctors. TSSUS also helped Melissa teach Carissa’s teachers and others about TS. She looks forward to meeting and talking with the membership about TS.
Meagan lives in San Francisco and has a daughter with TS. She is a corporate attorney.
Christine lives in Chicago with her husband, Peter, and three children Cecilia (16), August (5) and Julian (2). Christine's daughter Cecilia was diagnosed with TS when she was 12 years old. Christine is an administrative social worker, focusing on housing and health care. She works for the Illinois Department of Human Services as the State Homelessness Chief, leading efforts in preventing and ending homelessness. Prior, Christine was Director of Housing for Cook County Health, serving Chicago and suburban Cook County. Cook County Health is comprised of two hospitals, a dozen community health centers, provides the health care in Cook County Jail, the Cook County Department of Public Health and has a Managed Care Organization, CountyCare. Christine worked as an administrator in the housing sector with the Corporation for Supportive Housing, Housing Opportunities for Women and Heartland Alliance. She previously served in health equity positions with the Massachusetts and Cleveland Departments of Public Health. She was the founding Executive Director of the Chicago Torture Justice Center. Christine holds a Bachelor of Arts from the University of Notre Dame and a Master of Science in Social Administration from Case Western Reserve University. She loves to go to museums and cook with her family.
Jeanna is a Florida native who moved to the D.C. metro area in 2012. She graduated from the University of Florida with a Bachelor of Sciences in Psychology and a minor in Spanish and Statistics. She then earned her J.D./LL.M. from American University Washington College of Law. Jeanna was diagnosed with mosaic Turner syndrome right before her 14th birthday but never met a fellow TS sister until her late twenties. She joined TSSUS in 2019 and has become an active member since then. She hopes to further TSSUS in its mission to support and empower the TS community through education and engagement.
Erica was diagnosed with TS at birth and has been an active member of TSSUS for many years because she cares about the TS community and believes in the mission of the Society. She has been married to her husband Mitch for 24 years and they have twin daughters, Sara and Elizabeth (Lizzie) who are in college. . She has been a preschool teacher for the Chicago public school system for 15 years.
Director at Large
Janine has been married to Mel for over 20 years. They have 5 children, Joshua (19), Melody (17), Madyson (14), Julien (9), and Josslyn (15) who was diagnosed with Turner syndrome at 2 years old. Janine has been involved with TSSUS since 2008. She served as liaison between parents and the Oklahoma City Turner Syndrome Clinic. She also created aTurner syndrome parents’ group on Facebook and has been involved with military families with TS. She and her daughter Josslyn have been interviewed on radio, newspaper, and television newscasts educating others about TS in both English and Spanish speaking communities. Josslyn is now a sophomore who plays saxophone in the high school marching and jazz bands and enjoys playing sports. She was involved in a pre-med and counseling programs before taking a medical leave of absence to take care of her children. She enjoys researching Turner syndrome, spreading awareness, and helping others connect with the resources they need. She hopes to continue to support parents, connect with newly diagnosed families to help them find resources in their area. Janine resides in the Houston, Texas area with her family.
Dr. Jennifer Steele is an Assistant Professor of Library and Information Science at The University of Southern Mississippi, located in Hattiesburg, Mississippi. She received her Ph.D. in Communication and Information Sciences from The University of Alabama in 2017, and her research focuses on intellectual freedom and information access. Originally from Birmingham, Alabama, she was diagnosed with Turner syndrome at eight years old. As a university faculty member working in higher education, she has a passion for supporting women and girls with TS in pursuing their educational goals. She is an advocate for the work of TSSUS in promoting the advancement of Turner syndrome research and serving as a support system for anyone touched by TS.
Director at Large
Kimberly is a woman with Turner syndrome and was diagnosed with classic TS at the age of 14. She began her affiliation with TSSUS at the TS Days in Oklahoma City in 2017. This was her first opportunity to meet other girls and women with TS. Following the event, she and several other women with TS began to meet monthly to chat and talk about life. After several months of meetings, the idea to bring a TSSUS Resource Group to the Oklahoma City area was born. In November of 2019, the TSSUS OKC Resource Group became official, with Kimberly as the lead. She organized the first TSSUS Chasing Butterflies Walk in OKC and got the state's governor to recognize the day as TS Awareness Day.