Turner Syndrome and Family Planning

If you ask a woman with TS what the saddest part is for her, she will most likely mention infertility. Infertility is a very painful reality for many women with TS. However, a small percentage are able to conceive naturally, and a growing number are conceiving and giving birth with the help of egg donation and in vitro fertilization. Others are becoming parents through the gift of adoption through fostering, national, international, private and agency adoption processes. 

 

TSSUS can connect you with others that have experience with the many different ways to build a family.  

 

There are many ways to build a family...

Family Planning Resources
Adoption Journeys

The Clinical Practice Care Guidelines for the Care of Women and Girls with Turner Syndrome recommendations as related to fertility and reproductive assisted technologies:

 

  • Due to early ovarian failure, most women with TS cannot conceive on their own.

  • Spontaneous pregnancies occur occasionally but the frequency of miscarriages is high and malformations occur frequently in live-born infants of these pregnancies.

  • Counseling regarding fertility issues should begin at the time of diagnosis and motherhood options should be mentioned.

  • Patients need to be counseled fully regarding increased risks of maternal complications.

  • Normal results of heart and blood pressure screening do not rule out potential severe complications.

 

Please refer to the details within the guidelines for:

  • Assisted reproductive technologies with individuals on eggs

  • Technologies with eggs from another woman

  • Recommendations for follow-up during pregnancy

  • Fertility preservation in TS- there is not enough evidence to recommend routine fertility preservation for girls younger than 12 years old.

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Disclaimer- The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images and information, contained on or available through this web site is for general information purposes only.

Turner Syndrome Society of the United States  ~  11250 West Rd  Suite G  Houston TX 77065  ~ 1- 800-365-9944  ~    Info@turnersyndrome.org 

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