Height and Growth in Turner Syndrome

Short stature is one of the most common and easily recognizable features of TS, with an average adult height being 4’8”

The Clinical Practice Care Guidelines for the Care of Women and Girls with Turner Syndrome recommendations to physicians:

 

  • Begin GH around 4–6 years of age, or earlier if growth failure is already noticeable.

 

  • Continue therapy until satisfied with final height or until little growth potential remains GH therapy dosages for TS in North America is generally initiated at a dose of 0.350-0.375 milligram/kilogram /week, in Europe at 1.3-1.4 mg/m2 /day, and in Australasia at 4.5-9.5 mg/ m2/week

 

  • Dosage is divided into 7 doses (one for each day of the week) GH is given in the fatty tissue under the skin as an injection/ shot.

 

  • It is not recommended to add a very-low-dose of estrogen replacement before puberty age to promote growth

 

 

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Clinical Practice Guidelines for Turner Syndrome

The Synopsis of the Clinical Practice Care Guidelines reviews: 

 

  • What growth-promoting therapies are

  • The Efficacy and safety of growth hormone treatment

  • Growth hormone treatment with the anabolic steroid oxandrolone

  • Growth hormone treatment with childhood ultra-low-dose estrogen

  • Growth hormone and sex-hormone (estrogen) replacement provided at the same time

 

Patient and Family version of Turner Syndrome Guidelines

Turner Topic on Growth in TS

 

For convenience, the Turner Topic offers a one-sheet overview of Growth in TS based on the most requested information from the parent community.  The Turner Topic for Growth includes the following information:

 

  • General information about growth issues in TS

 

  • An overview of growth hormone therapy

 

  • Is growth hormone safe?

 

  • The Clinical Care Guideline recommendations for growth 

 

  • How much does growth hormone therapy cost?

 

  • Expected results of growth hormone therapy

 

Growth in Turner Syndrom Turner Topic TSSUS

Helpful Resources for Growth in TS

 

  • The TSSUS Turner Syndrome: A Guide for Families discusses growth in depth such as bone age, mosacism and growth, growth charts, how to use a growth chart, quality of life and short stature, and best outcomes of for increased adult height in TS.

 

  • Turner Syndrome growth chart for 2- 19 years.  A TS growth chart isn't needed for under age 2.

  • Turner Know your Body, Chapter 3: Growth hormone (GH) treatment. Girls with TS do not lack growth hormone but appear to be less sensitive to the effects of GH in the body.  GH is a protein that is produced in the pituitary of every human being.  The hormone is important for growth, metabolism of fats and carbohydrates, bone strength, muscles, the heart and circulation, and stimulates the liver to produce a so-called growth factor, IGF-I (insulin-like growth factor I).

  • Companies that produce growth hormone in the United States may offer Patient Assistance Programs for obtaining GH through insurance companies, payment assistance, and other helpful information.

 

Turner Syndrome a Guide for Families TSSUS
Turner Syndrome Growth Chart TSSUS
Turner Syndrome know your Body book

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