A Day and a Life with Turner Syndrome

Many people have wanted a book of stories for quite some time and some people have even started the project in the past but never had the time “just do it”.  Marriah Lombardo is the book project coordinator and says, “Now is your opportunity to share in the fun and not have to worry about the details of the creation of a book. We know that growing up is independent of height or even puberty!  For parents of a child diagnosed with Turner syndrome, as you already know, your child is special, and they will have a successful life.  For our TS sisters, this book would hardly be worth it, if we could not make you smile and provide company along your journey.  For the public at large, because this syndrome is relatively unknown, we would like to educated everyone, and help him or her understand situations in their life.”

Story Guidelines

1. Tell an exciting, sad or funny story about something that has happened to you or someone you know. Make sure that you introduce the character(s).

2. Tell your story in a way that will make the reader cry, laugh. Don’t leave anything out — how did you feel?

3. The story should start with action; it should include a problem, issue or situation. It should include dialogue and the character should express their feelings though the conflict or situation. It should end in a result, such as a lesson learned, a positive change or pay-off.

4. Stories have a beginning, middle and an ending that often closes with a punch, creating emotion rather than simply talking about it.

5. Above all, let it come from your HEART! Your story is important!

6.  If you feel that you have a wonderful story but are unable to write it correctly, please contact This e-mail address is being protected from spam bots, you need JavaScript enabled to view it and someone may be able to write it for you.

What we ARE NOT looking for in a story:

1. A sermon, an essay or eulogy.

2. A term paper, thesis, letter or journal entry.

3. A biography or testimonial.

Story Specifications

It is preferred that all submissions are sent via our website.  If you need to send your submission by postal mail or fax please use the address and fax number provided below. 

2. Stories and poems should be non-fiction, ranging in length    between 300-1200 words.

      3. No anonymous or author unknown submissions please.  Name use will be chosen by you the author.  Options are full names, a first name, city or state,  or a “Dear Abby” type name such as “victorious”, “full of joy”, etc. upon approval of story.

4. Send only one copy of each submission.

5. We do not return submissions, so please don’t send the original.

6. Please submit only stories or poems that have not been previously published. The only exception to this is if your work has only been published in a small local publication with limited circulation.  

If your story is chosen for  A Day and a Life with Turner Syndrome (Name so far- but please send in your title ideas!), you will be notified and your permission to print it will be requested. Please know that we never publish anything without written permission from the author.

Feel free to submit more than one story or poem.

You can submit your story 3 different ways:

Internet: http://www.turnersyndrome.org

Your stories and poems have the best chance of being used if you submit them through our web site.

Mail: Turner Syndrome Society
            10960 Millridge North Drive #214 A

            Houston, TX 77070

Fax: 832-912-6446

The deadline for all entries is January 1, 2010

Do not know what to write about.  Here are some story ideas!

1. Diagnosis: How did you discover that you had TS?

2. TS Throughout the lifespan-The milestones of life reached with TS.

Early Years

Childhood

Adolescence

Young Adulthood

Adulthood

3. Dually Diagnosed: Are you diagnosed with Turner Syndrome and another condition? Please share your unique experience.

4. What are the Myths and Realities of Life with TS?

5. Parents please share your favorite story about life with TS.